Let's face it not many people love being in hospital at the best of times it's not the most dignifying or pleasant experience sometimes, but being in hospital isn't easy when you have Muscular Dystrophy or any other disability for that matter the whole experience from start to finish can bring a whole host of … Continue reading Accessibility issues within NHS hospital’s for Disabled patience
Are you a parent?! Can you Imagine changing your baby/toddler on a public toilet floor that hosts hundreds of germs! Is your answer 'hell no, that's why there is baby changing areas available'. What about a Disabled child or adult why is it classed as acceptable to use a dirty toilet floor or not be … Continue reading Changing places – Guest post with Jen & Handsome Riley
There’s something exciting about packing a little suitcase for a night away somewhere new, so when the opportunity to spend the night at Chicheley Hall thanks to a family wedding my little suitcase was packed in my head ready to go. I've always said that great Britain has to offer most beautiful places and countryside … Continue reading A wheelchair night at Chicheley Hall
As this year marks a 100 years since women won the right to vote as I was reading about the suffragette I found a story about Rosa May Billinghurst the disabled suffragette and women's rights activist she was known as the 'cripple suffragette' I found myself wanting to know more about Rosa may Billinghurst and … Continue reading New found heroine – The Disabled Suffragette.
We all love a good sunny holiday abroad so it shouldn't be any different for anyone in a wheelchair, unfortunately holiday's can go terribly wrong no matter how much you put your trust and faith into the travel agent/company you book with. So every now and then you find yourself in battle with a company … Continue reading My Loveholidays.com experience
As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other's are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change's when your living with … Continue reading As my body changes, so do my needs.
So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I've understood from a pretty young age that … Continue reading Walking to wheelchair – my story of transitioning.
what do you see when you look at me!? someone who alway's has a smile and looks like they have everything under control or someone who doesn't!? It's mental health awareness day So here's me laying it bare for all to read, I've not always been very open about my depression or anxiety, to look … Continue reading Laying it bare.
It's crazy to think that this funny looking green plant has so many healing ways, We've all heard of the aloe vera plant it really wouldn't surprise me if you have a plant called vera tucked away on a window sill somewhere, I was first introduced to this healing wonder by my mummy, "I've got … Continue reading How Aloe Vera help’s me
I’ve not been disabled my entire life, Some people’s responses are often different some positive some sound condescending. I'm not one to generally bring up in conversation about being disabled with new groups of people, not because it bothers me more because it can create an awkward atmosphere for others. people can give you the "aww … Continue reading Being proud of who you are.