'Tis the season to be jolly￼. But what happens when it becomes to much to handle, your brain goes into overload making it harder to enjoy the festive season. There's an added pressure when your disabled as it's not as easy to just remove yourself ￼ ￼to take a break, gather your thoughts or just … Continue reading Tips to help reduce Christmas stress and anxiety
Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn't expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment process … Continue reading My personal Independence payment and decision￼￼￼￼
Living with a disability can mean a whole mixture of things; but yes, you actually do have a disability or a list as long as your arm, you find ways of adapting your life and how you do things. One big down side of having a disability you also have to handle how others comment … Continue reading I’m not a wheelchair!
If you follow my blog you’ll already know I have a rare form of muscular dystrophy and if not welcome. So It’s probably time I explained a little bit about MD maybe you know someone with MD. Or, maybe you’re new to the world of Muscular Dystrophy. You maybe surprised to know there are over … Continue reading What you need to know about muscular dystrophy.
It's often looked at when your bum sits in a wheelchair it's a negative thing by some non-disabled people, of course there are barriers and challenges everyday be silly not to say that, but focusing on the positives rather than the negatives. When life gives you lemons, make a gin and tonic and use the … Continue reading Benefits of being in a wheelchair
It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
I don't know is how many times I've looked at the title thinking how do I even start writing this, as I'm struggling verbally with my words and anyone that knows me knows I definitely don't struggle with words! I've been sitting (pun intended) on this little secret for a few weeks now, I was … Continue reading 2019 Shaw Trust Disability Power 100 List
We all get stressed at some point or another everyone has their own ways of de-stressing, you can find a lot online that helps you like going to the gym, jogging, walking etc but when your in a wheelchair a little bit difficult to jump up stick your joggers on and run it off, not … Continue reading How to De~Stress when you can’t walk it off
For a long time it's just been hubby and I plodding along together as a team, but having a Progressive muscle wasting disease called muscular dystrophy, my body changes year by year, it can sometimes be hard on a relationship/marriage with me constantly needing help with everyday tasks like dressing, washing even going to the … Continue reading When it all goes wrong with a personal care Assistant!
I was extremely lucky to get to write for Disability Living here's what I wrote for them. Adding to my accessible home post! Many of us fondly remember the image of a young farm girl, clicking the heels of her sparkling, ruby red slippers and longingly chanting the words, “There’s no place like home, there’s … Continue reading No place like an Accessible home!