Being disabled does NOT make me a burden to my partner. Being disabled does NOT make me a burden to anyone! Lets call it the B-Word I've never approach this subject ￼￼before so why now; I think it's probably a word I know I've felt many time before as I'm sure many other disabled people … Continue reading Being Disabled does not make me a burden to my partner
Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn't expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment process … Continue reading My personal Independence payment and decision￼￼￼￼
If you follow my blog you’ll already know I have a rare form of muscular dystrophy and if not welcome. So It’s probably time I explained a little bit about MD maybe you know someone with MD. Or, maybe you’re new to the world of Muscular Dystrophy. You maybe surprised to know there are over … Continue reading What you need to know about muscular dystrophy.
It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
My journey with diabetes even though it's only been a few months I've had to change my life in different ways from now stabbing my fingers twice a day to get my blood sugars, taking medication daily and most of all throwing everything I know about food out the window. After the initial shock and … Continue reading Aloe Vera and my Diabetes type 2
In aid of Changing Places Awareness Day 19th July 2019 This will be my 3rd year celebrating the world of changing places, it's definitely been named by my husband, family and friends as my favourite subject to talk about! I kinda fell into Campaigning about changing Places toilets by mistake after reading an amazing blog … Continue reading Changing places and why I started campaigning!
I've had many trips and sleep overs (hubby likes to say I abandon him) at Milton Keynes university hospital in many different wards but it was my first experience staying on the high dependency unit. Due to an operation i underwent in April of this year I call it my fanny MOT. After my fanny … Continue reading HDU Ward 6 – Milton Keynes university hospital
I like my Life to be full of smiles and laughter... But I want to share apart of my life I don’t normally show everyone, not because I'm ashamed or scared of what others may say, And I'm definitely not looking for any sympathy as this is my life and I'm ok with that it's … Continue reading My Cough Assist machine
It's been over a year in the making but we finely made it, as of the 7th January I set a new milestone in my life living with Muscular Dystrophy. It's only ever been hubby and I battling though learning and adjusting as my condition gradually progressives as the years go by. I have a … Continue reading Setting new milestone with a personal assistant.
The day has finally arrived where I can share with the world, shout it from the roof tops... YES it's true I've been keeping a big secret since June 2018, As much as it was going to kill me to keep this secret I knew I had to, it was far to important to risk … Continue reading My secret with Tesco supermarket!!