Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn't expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment process … Continue reading My personal Independence payment and decision￼￼￼￼
I've never shied away from the fact I've battled over the years with depression and anxiety, I am a working progress like most people are. I always feel I have to work that little bit harder having a Disabilty already having a rare form of Muscular Dystrophy a Progressive muscle wasting disorder comes with it's … Continue reading CBT Therapy
I like my Life to be full of smiles and laughter... But I want to share apart of my life I don’t normally show everyone, not because I'm ashamed or scared of what others may say, And I'm definitely not looking for any sympathy as this is my life and I'm ok with that it's … Continue reading My Cough Assist machine
Well can you believe we are just about to wave goodbye to 2018 going into 2019 or maybe some people are sticking their fingers up to it!. it doesn't feel real anyone else feel that way? where did this year go!? My 2018 break down 2018 started with a beautiful family wedding, but unfortunately it … Continue reading Reflection on 2018
As you would have seen in the news reports over the last week it's suddenly dawned on the able-bodied world that there is a massive shortage in suitable housing for disabled people. Unfortunately this isn't as much of a surprise to us that are disabled we have known this for years. It's been called the … Continue reading Housing crisis
Let's face it not many people love being in hospital at the best of times it's not the most dignifying or pleasant experience sometimes, but being in hospital isn't easy when you have Muscular Dystrophy or any other disability for that matter the whole experience from start to finish can bring a whole host of … Continue reading Accessibility issues within NHS hospital’s for Disabled patience.
It's now been over a month since I came out of Milton Keynes university hospital after spending 3 weeks In their care, it's been a struggle adapting back into home life, finding the energy to be stood up and being put into my chair has been hard work let alone getting washed and dressed I … Continue reading I’ve never been this ill before even with having Muscular Dystrophy