Most people take for granted but for some of us it’s the thing of nightmares!!

Theses days just wheeling out the door its a check list of have we got everything, before hubby Fort Knox the door behind us! kinda reminds me of a new mum packing half the house while muttering away at the baby we’ll take this just in case…that’s pretty much my life!! When your planning a lunch or evening out with your girls or a boys get together to watch footie, is your first thought I will have to restrict how much I’m going to drink just incase the toilets aren’t equipped with everything you might need, as the only other option is to hold it in until you get home, unfortunately around 250,000 disabled people have this worry every time they leave their home or even still don’t go out in the fear of having that embarrassing moment!! I’m lucky enough that most of the time I venture out I have a hubby but on those odd occasion I’m with the girls yes I’m watching what I drink. Here’s the sad but real truth… Many disabled toilets in the UK are unequipped, if you need a hoists forget it!! some are to small to even fit a wheelchair in on its own let alone with a Carer, forget trying to adjust clothes (I don’t fancy flashing my knickers these’s days!!) If your capable of transferring yourself try that when the toilet’s to low, as for grab rails they are either badly fitted or not enough, baby changing tables have a habit of just getting in the way.

So what’s needed…

More changing places and what’s a changing place toilet

Changing Places toilets provide

  • The right equipment
  • A height adjustable changing bench
  • A tracking hoist system, or mobile hoist if this is not possible

Enough space

  • Adequate space in the changing area for the disabled person and up to two carers
  • A centrally placed toilet with room either side for the carers
  • A screen or curtain to allow the disabled person and carer some privacy

A safe and clean environment

  • Wide tear off paper roll to cover the bench
  • A large waste bin for disposable pads
  • A non-slip floor
This will help an estimated 70,000 people living with a form of Muscular Dystrophy  in the UK. Can you imagine how many others it will help, we all know someone that’s is disabled or has a disabled child give them your support. 8vUW1_e7_400x400 To support and raise awareness of the need for Changing Places toilets, Muscular Dystrophy UK established the #FitToBurst campaign Go have a read of some real life stories including my own at http://www.changing-places.org/real_life_stories.aspx

Kerry x

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Not Accessible for everyone!!

Over the years I’ve had several conversations with different people for all different reasons down to care, equipment, benefits and general help. But all conversation seem to have the same ending a very misconstrued idea of what’s available and accessible to people who have any form of disability. Just recently I’ve had a few issues with the care company that provides the only help we have “domestic work” Generally all things me is covered by hubby. The word “Disabled” can have many different meaning as not one person with a disability has the same disability, it might have the same name but everyone is different, crazy hey but very true!! So when someone shockingly looks at you saying you only have 2 hours of domestic help wow that’s madness and your husband does everything else, you know your entitled to so much more “you should playing the game” Now as much as I really want to answer in my very sarcastic way “no really I never knew that please do carry on and tell me how!!” But unfortunately my mother did install some manners within me, so I always graciously smile and let them tell me how to “play the game“. so this so-called “game” that most people seems to think Is super easy to play, let me fill you into this crazy notion that you have it’s not as black and white as you think, it’s a struggle for most of us to get half the help we need and you think we are entitled to!! everything that I have from wheelchairs, hoists even down to the all singing and dancing toilet, I have had to fight very hard to get over the years, that includes the  multi purpose-built disabled bungalow that I was told I wasn’t entitled to because I was under the age of 60, even just last year the council threatened to take the only help we do have away. Have any of you watched DIY SOS?? I mean watched and really listened to their stories unfold and cried because their real life stories are heartbreaking, most of these families all have one thing in common a disabled child or parent/s that struggles to get the right help or funding to help there needs, so if it was so easy to “play the game” to get everything they needed to make their lives more independent or comfortable would any of them really call a TV show in desperate need of help to transform their homes so their loved ones could still live at home with people who love them and not face having to make the hard decision of a residential home!! So if you are someone who thinks this “playing the game” is as easy as you think it is, next time you feel the need to say the words “you should playing the game” don’t just assume they haven’t already tried.

Kerry x

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The Egyptians called it the plant of immortality.

The Aloe Vera plant some know it as the Miracle Plant and why not with it’s many known health benefits, it can be dates as far back as the Egyptian times, named the plant of immortality and as the wand of heaven to the Native Americans.

It can be grown in the comfort of your home and used in the cases of minor wounds, scrapes, cuts, and burns. Yet, it often not known for its benifits when used internally.
This miraculous plant contains more than 200 biologically active, naturally occurring constituents, such as amino acids, polysaccharides, enzymes, vitamins, and minerals that help the absorption of the nutrients.
The Journal of Environmental Science and Health reports that it has potent antibacterial, antiviral, and anti-fungal properties which boost the immune system, cleansing the body and protects it from invading pathogens.

Vitamins
This plant is a rich source of vitamin C, A, E, B1, B2, B3, folic acid. Scientists have found that it aloe Vera is high in vitamin B12, which is needed for the production of red blood cells.

Therefore, it is excellent if you are a vegetarian or vegan.  It also helps the bioavailability of vitamin B12, as it assists the body to absorb it and use it easily.

Amino Acids
It also includes 20 of the 22 essential amino acids needed by the body, as well as salicylic acid, which treats inflammation and fights bacteria.

Minerals
Aloe Vera is high in magnesium, iron, copper, calcium, zinc, chromium, selenium, sodium, potassium, and manganese, which support the metabolic pathways.

Enzymes
This plant is abundant in important enzymes such as amylase and lipase which help digestion by breaking down fat and sugar molecules.

Additional Uses
Aloe Vera effectively cleanses the body and removes the toxins from the liver, colon, bladder, stomach, kidneys, and spleen, and it is thus extremely helpful in the case of gut inflammation, ulcers, indigestion, and upset stomach.

It is also great in the case of arthritis, strengthens the digestive system and relieves joint inflammation.

Most people don’t know the outer part of the Aloe Vera leaf is Latex and some people are allergic to it, the yummy goodness comes from inner gel.
Use aloe Vera and enjoy its numerous health benefits!

Kerry x

 

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Feelings 

Feeling have a funny way of raring there little head back into your heart after thinking you had made them disappeared whether it’s locking that volt up and throwing away the key “forever” So quicker than I could scramble around to find the key to lock it back up!! that locked volt popped wide open to something that Ive never really had any understanding of why it got to the place it did.

So this is me dealing with a question I may never know the truth to, will this person ever read this probably not hes had no interest and want in coming and knocking on my door to tell me what I ever did that was so wrong for him to cut his eldest daughter out his life for nearly 3 years, so why write this well in some crazy way this is for my benefit,

I’ve only ever been able to go by what others have told me so when your told it’s because of someone else’s actions, your left even more confused and wondering if the whole father daughter relationship wasn’t as close as you thought it was, that i never really knew him or understood him and Vice versa.

So where does it stem from the day I got married!!

I don’t have much control over my life as much as I try to my body sometimes has different ideas so I tend to take everyday as it comes, most people think running away and getting married is romantic I guess others have a difference of opinion in this case, did we do it out of spite no we did our wedding for us no one else it was how we wanted it, was it meant to upset anyone of course not but you can’t help how others feel, I’ve always said if it was hurt that stopped my father knocking on my door I would have apologised THEN, now nearly 3 years down the line Different story!! 

This is my letter to my absent father…

When I was conceived you was there, when I was growing inside my mummies tummy you was there, when I was born you was there then within a blink of an eye you where missing from my childhood the why has never mattered to me. From a early age I fantasised about a father I didn’t know!! 

This man was my hero he was the greatest man you could ever meet, he was always there If i fell and scrapped my knees and elbows, he wanted to teach me how to ride my bike even if it took hours and hours, when I was sick he was by my side, when I scared he told me everything will be ok, he heal my hands and swung me around around till I couldn’t breathe because I was laughing so hard, when he hugged me he made me feel safe, he never missed a chance to kiss me good night and tell me “I love you”. 

In reality that’s where you should have stayed, you have walked in and out of my life from a baby to seeing me again at 7 for one day and promising me you will call to see me again, then leaving me sat on the bottom of my stairs for weeks waiting for that call that never came, then at 15 you walked into my life again (I’m still trying to work out why) like most teenagers I was angry at the world for different reasons, for every weekend you did come and picked me up I could see what I had missed out on a whole family and the way you looked at your other children with pure love, it just wasn’t the way you looked at me, at that time it was ok I could live with just knowing I finally had you in my life thinking it would come in time, in all honesty I’m not sure it really ever did and if you was honest with yourself you would probably agree, I was just the product of a drunken teenage Mistake after winning “its a knock out” 

If there was true love regardless of how hurt you may have been you wouldn’t have left it nearly 3 years to knock on your daughters door!!

Will you ever read this who knows I just know I’ve cried for the last time and moving my heart on, over something I may never understand…

 

Kerry x

 

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Working from my go-kart 

I guess the clue’s in the title on where im going with this one!!  Before i get to the present I’m going to go back a few years or more I’ll probably waffle on, try not to but this is me so you’ve not much hope!! Haha sorry…. From a young age I’ve watched my mum work so hard from being a life guard/swimming instructor, trampoline coach, to teaching hockey at my school (yes at my school, we all know mum’s love to embrace the whole embarrass your kids my mum did it oh so very well) then starting her own forever business back in 1993, doing all this while fighting with her own body changes as she like me has muscular dystrophy, so watching my mum she became my ultimate hero sticking two fingers up to muscular dystrophy and never letting it stop her from doing what the hell she wanted, So I definitely wasn’t going to do anything less than the same when it came my work life… I’ve always been a hard worker (well in my eyes!!)  my first ever paid job was at 14 as a pot wash, a couple of times I was lucky enough to be a waitress at a restaurant called Softleys in Market Bosworth a country side bus ride away from my village, the reason my mum!! She probably wanted to install in me that nothing comes for free (with rolling eyes and really mum.. in true teen style of course) if I wanted my beautiful horse Tom then off to work at weekends i went to help pay for feed etc, not that I’m actually sure if mum ever took any money off me!! I’ve worked some weird and wonderful jobs in my walking days from Turkey plucking at Christmas one year with my best friend  Leanne when we was 16 now that was a stinky job (no gobble gobbles crossed my mouth that year for sure!!) couple of cleaning jobs, retail, horse yard, restaurant, David Lloyd Leisure, then i found the pub trade and well the stories I could let you but that’s a whole blog to itself I’m afraid!! In 2004 my life changed ‘forever‘ Did I ever think I would be in the situation where working the job I loved would become a problem no definitely not I believed I was invincible that if I just carried on pushing I would be fine, unfortunately my body and muscular dystrophy had a very different plan. For 10 years it was easier to tell people i had retired and happy with that, hmm I’m not to sure people really fell for that, I didn’t become a complete jobless bum I did a few bits of charity work here and there. Present day… Where are me and the go-kart now, After taking to few close friends in the same business plus my mum and of course my hubby whose answer was ‘do what you want baby, up to you’ man of many words my husband lol, but secretly delighted in the thought that I would finely have something to do i might actually stop driving him more crazy than he already is, But only a little!! So with nothing more but either being inside my own head for the rest of my life (trust me no one needs to be in my head) or doing something that could change my life “forever” three guesses what I did, yes i got off my wheels and did something to change my life for the better, I took the plunge as my mum did in 1993 and started my own business. Was I scared er yes!! But excited at the same time so many mixed emotions, i was entertaining into a world I had only watched my mum do, the brain is in over drive by now saying oh wait i wasn’t brainy enough for this what was I doing “crazy lady” you’re in wheelchair and have muscular dystrophy with one arm that kind of works and the rest of your body laughs at you!! After telling myself over and over to just shut up Kerry just do it, a year on was it the best decision i made or a bad one?? I don’t know you tell me…if a bad decision is having my confidence back to want to do more with my life than just sit on my butt (yes pun intended!!), my self-worth I have my smile back I wake up every morning with a smile ready to start the day excited to see what the day is going to bring me, I go to bed grateful to have met and spoken to some truly amazing people, I go out more than I have done in years I spend more time and talk with real human beings!! my passion for life and wanting to show my husband the world in my go-kart is t a high, most of all I have ME back the person I thought I’d lost a long time ago is back with full force, I see the world as I use to full of possibilities, i laugh more and have fun with others I even laugh at myself again, does it take me longer to get things done more than most people of course, one working arm bandit and all that!! Do I care god   why should I great things come from taking your time!! (Definitely in my case) Is it hard work of course is it fun though (remember nothing comes for free) do I feel some days I work my wheels off definitely giving up is not an option my want is greater. To me I’m just doing what everyone else out there is doing working to making their dreams come true and having the best time doing it, Is it luck that i get to work alongside some incredibly inspiring people that make me want to be the best person I can be, i want to be the same as the people I’m surrounded by an inspiration to others even if it take me the rest of my life, so no we all make our own yellow brick road in life if you choose not to change your life then more fall you if I can change my life with a body that hates me everyday and my own set of wheels underneath to run people over with!! (joking or am i) then you can…

To end was this a good or bad decision??

Kerry x

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New Year’s Eve 

How fast has this year gone?! I know it can’t just be me that feels like I’ve had my eyes closed all year and open them on New Year’s Eve!!

So in true New Year’s Eve form of me & plenty others I’m sure, I have been reflecting on pass and present ‘as you do’

So as I’m sitting in my comfy chair a new year playlist on in the back ground thinking back over the last year, I can’t help but think further back to when my world changed ‘forever’ leaving my job, moving home, getting my first go-Kart, losing family members!!
Now 13 years on we come to this moment of me sitting in my comfy chair on New Year’s Eve writing a blog, remembering what was and what is. I’ve met and married my best friend of 10 years (everyone fails to tell you though, you want to kill them more after you’ve married them!!) with our two crazy black cats Skye and fudge entertaining is an understatement.

My last 12 months haven’t been all full of sunshine and Roses all year round but you know what that’s okay, why Kerry I hear you say… because it’s been full of little challenges here and there that have given me the strength to grow as a person, the universe likes to keep you busy and on your toes from time to time, to remind us we are only human and it’s okay to fail at times, it’s ok to learn from those mistakes plus it’s okay celebrate when you have achieved something great in your life too, hell shout it from the roof tops because the ones that truly love you will celebrate with you no matter what and the ones that don’t….. Well might be time to rethink what they bring to your life…

This last year I learnt it’s OK to ask of help and not be so stubborn (still a long way to go on stubbornness lol) my business is starting to grow slowly but surely, it’s shown me staying persistence and being positive the hard work I’ve put in pays off eventually, getting out of my Comfort zone by doing live training slots on the team training, doing a live event to 2000 people, putting my first video on YouTube for the world to see!! I’ve become a more positive person than last year I know what I want in my life, making a plan about your life isn’t such a bad thing it gives you something to work and focus towards, and from making that plan we went on our second holiday abroad, had Christmas dinner out at with the out laws (no washing up for hubby whop whop!!) a big part of my mindset change is the people I’m surrounding myself with when you get the right set of friends that want to see you grow and achieve nothing but great things, that will uplift you just by entering a room, grab them stick them in your pocket (just don’t forget to feed and water them!!).

As we all come to the ending of 2016 with friends/family I want to hold a glass up and thank all the truly AMAZING people in my life new friends I can’t wait to get to know you more, as always my beautiful family/friends you have supported me in my venture thank you so much for your love, Constant guidance every year I’m so very grateful for each & everyone one for keeping my feet on my wheels, you are my driving force to do what I do I know your all always behind me keeping me going (with Pom-poms I hope!!)
I won’t be doing New Years resolutions I will take 2017 as its meant to be the as the person I am now ready to learn and grow more taking everything I’ve learned from 2016 with me…

 

Kerry x


Happy new year everyone have a great time bring in the new year what ever you’re doing!! 

 

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My first blog!!

Well here goes my first blog…. As scared as I am to start this whole new world of blogging with absolutely no idea what I’m doing, there are only so many Google searches of ‘ how to do a great blog’  before saying to yourself ok just do it already! what’s the worse that could happen!? No one will like it ahhh never mind, plus just keep thinking ‘it’s fine no one will probably read it anyway’. so I guess the best place to start is with something I definitely know a lot about me!! im 29 with 8 years experience  (shhhhh don’t tell everyone!) I’ve had my own set of motorized wheels nows for around a little over 9 years, for anyone that does know me knows I love to call it my  go-kart, I’ve been married to my very own man-child (now I know all you married or living with females know what I mean when I say man-child!!) My wonderful husband of 2 years and been together 10, plus our 2 crazy cats skye and fudge. I was diagnosed at 24 with a form of muscular dystrophy which didn’t really come as much of a surprise as my mum and brother who had already been diagnosed with it. I’ve always believed that it doesn’t matter what cards in life you have been given you can choose how you deal with it, you can wallow in self-pity or get on with it I chose to get on with it and count how many people’s ankles i can take out on the way!! Haha… ive always been a pretty positive person but don’t get me wrong it’s not all sunflowers and Roses all the time when you brain is telling your body to move and your body is just laughing at you but that’s life laugh it off. I can still do what everyone else does go abroad, got to the gym not that I’ve seen the inside of one, swimming, go to the pub with the girls only difference they have to try walk in a straight line I zigzag in style, sky diving (not that anyone will let me boring!!) Even run My own business from my wheel’s, it just takes a little more planning that’s all the go-kart has a lot of baggage she can be a real diva at times!! I guess what I’m saying is don’t let a disability or people and Society define you as a person if you want something in life go get because the only person that can fail at your life is YOU!!

Kerry x

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