Our accessible home anniversary

Wow I can’t actually believe we are in May where has the time gone!? The first weekend in may ‘bank holiday weekend’ is a special memory for hubby and i, but more for me it was the weekend we finally moved into our accessible home provided by Habinteg – I have spoken a few timesContinue reading “Our accessible home anniversary”

Removing barriers of employment for disabled people

If the future me had wheeled into my pub at 24, sat me down and said your life is going to change in more ways than one. It might take you a few years to find your place within society and where you truly belong in this crazy world but you will. When i wasContinue reading “Removing barriers of employment for disabled people”

I have my legs back!

Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinue reading “I have my legs back!”

As an adult with Muscular dystrophy, i have a responsibility.

I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”

Representation matters

Representation. As a disabled person I know what that one word means to me, but what does it mean to you? As human beings what we visually see can make a huge impact on our lives and if you’re visually impaired you rely on someone to describe what they are seeing, so what impact doesContinue reading “Representation matters”

Life lessons I’ve learnt being disabled

Spoiler alert: Being disabled means living in a society that wasn’t designed with mine or other disabled people’s needs in mind. That first sentence may sound rather harsh but in reality very true, there is no other way to describe it from a disabled person’s point of view – It can create difficult situations, andContinue reading “Life lessons I’ve learnt being disabled”

Muscular Dystrophy – keeping your muscles moving!

Exercising, easy right? – as simple as putting on your lycra outfit, sweat bands and saying ‘okay let’s do this’ with Olivia Newton-John ‘let’s get physical’ playing in the background. But how realistic is that for many disabled people right now? Especially at the moment if your unable to do any exercise or get outsideContinue reading “Muscular Dystrophy – keeping your muscles moving!”

What advice do you wish someone would’ve given you as a disabled person?

It’s a question i have sat (pun intended) pondering about many times, what advice could i give myself or wish someone would have given me when navigating or transitioning from the non-disabled into the disabled world and in all honestly even now. There is no wrong or right answer as the advice can be given,Continue reading “What advice do you wish someone would’ve given you as a disabled person?”