Disclaimer: my life Kerry’s way is a personal blog. Any views or opinions represented in this blog are personal and belong solely to the blog owner, and do not represent those of people, institutions or organizations that the owner may or may not be associated with in professional or personal capacity unless explicitly stated. Any … Continue reading Incompetence nearly killed my mum!
I don’t know about all of you - I sometimes have this overwhelming urge to shout ‘Hello, I’m still here’ I’m not invisible while frantically waving my arms in the air - well, if that was at all possible, I’ll need to rope in one of my PA’s to do that part! I’ve openly said … Continue reading I want to scream I’m still here!
Have you ever looked around at your home and thought I really hate living here not because of the decor or the area that you live, but because you’re stuck in one room unable to access any of the other rooms in your home. This one room acts as your living room, bedroom, kitchen and … Continue reading For Accessible Homes
Accepting a new normal when I was just feeling like I had found my feet... well wheels! ‘Normal’ what does that even mean and does it really exist? Everyone’s normal is different or we would all be boring. plus life has this way of dealing us different cards of change from time to time whether … Continue reading Accepting a new normal
Independence. What does that one single word mean to you? Most people take their Independence for granted - that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyed … Continue reading Freedom is more than Just a state of mind, it’s my wheelchair
Over the last 3 years campaigning has become such a massive part of my world, which got me thinking about all of you, yes I think of you all on the odd occasion don’t get too excited now! Have you ever thought about starting your own campaign or just wanting to get involved in a … Continue reading Campaigning 101
It’s that time of year again, even though it feels like yesterday I was last jabbed in the arm - most of us are use/waiting to receive a text message or a call from our GP surgery inviting us for the annual arm jab. This year will be very different when it comes to having … Continue reading Rolling up your sleeve – Free Flu jab
Being disabled sometimes comes with a short or long list of needs It can feel like a military operation just leaving the house - well that’s if you’re anything like me and that doesn’t include my Mary Poppins handbag with the kitchen sink! Whether it’s equipment or supplies it’s not something we can just say … Continue reading Sharing in times of need.
Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane - unfortunately having Muscular Dystrophy myself I need to know my limits … Continue reading Challenging myself – while fundraising for Muscular Dystrophy
Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition - If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time I … Continue reading My life with Myofibrillar Myopathy – Muscular Dystrophy
I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat the … Continue reading Being disabled doesn’t automatically mean I should be depressed
This is a subject that I’m coming across a lot more lately whether it’s online or in conversation - the social model of disability. What does it actually mean? Many people that are disabled see it in different ways, why because one size doesn’t fit all, in other words, each person’s disabilities affects them in … Continue reading Is it disability or accessibility – The social model
Having a disability isn’t a weakness, it should be seen as a strength. What does the word disability mean to you? When you look at someone with a disability what do you see strength or weakness. Is the first thing that pops into your mind ‘oh bless it must be hard’ or ‘I’m glad I’m … Continue reading Having a disability isn’t a weakness
Have you ever had a moment where your face tells a thousand stories, that real eye-rolling moment in a conversation when someone says ‘oh I know just how you feel I once had an injury and couldn’t do anything for weeks’, I don’t know about you but I can pretty much tell when someone is … Continue reading The barriers we face as disabled people
Ableism This is definitely a word I’m seeing pop up more and more, but this word has always been lurking in the corners as if it’s waiting to say ‘remember me’. It has played a very significant role in all of my life even before I was diagnosed with Muscular Dystrophy because I grow up … Continue reading Are you being Ableist – And don’t even know it.
In 2017 it was reported that ‘social care’ was in cataclysmic crisis. Disclaimer: it’s important to remember NOT ALL Carers and Care Agencies are the same and this post is just about care at home not care homes. As someone who relies heavily on having extra help at home due to having a disability with … Continue reading Home care agencies neglect and indifferences – Who’s responsible
Overcoming negative body image is never easy, even harder when you have a disability. Have you ever compared yourself to somebody else? Yep me too. So many of us are guilty of obsessing over our bodies or what other people think and the way we look. With social media platforms like Instagram, Tik-Tok and YouTube … Continue reading Overcoming negative body image – when you have a disability
I have always loved the thought of being able to travel back in time to maybe the roaring 20s or the flower power age of the ’70s, even 18th Century could be interesting but especially travelling along the course of my own life. I think it's got a lot to do with recognizing how much … Continue reading A letter to my 10 year old self.
It would be pretty unusual if I didn’t talk about my favourite subject on today of all days Changing Places awareness day! My journey with Changing Places started with a blog I wrote in 2017 it seems like such a long time ago but in reality, it was 3 years ago. After reading a blog … Continue reading BIG announcements for Changing Places
Anyone that knows me, knows that my favourite subject is talking toilets yes it’s a strange subject to get my wheels excited about I know. But not just any old toilets you’ll find me normally talking about changing places but this time around I want to talk about all accessible toilets. And a subject that … Continue reading Using a disabled toilet when you don’t need to
13.9 million Disabled people in the UK. 1.8 million have an accessible housing need - 580 thousand are of working age. We’ve heard government saying like ‘Build better, build beautiful’ or the newest one ‘Build, build, build’. Remember the famous movie of a young farm girl, clicking the heels of her sparkling, ruby red slippers … Continue reading Accessible Housing needs
Ever looked at an item thinking I can totally find that cheaper elsewhere or online - every penny helps right?. But what if you already know it won’t be cheaper elsewhere but it’s something you need to help keep your Independence. Society seems to have this deluded conception that when you have a disability everything … Continue reading Having a disability comes with a big price tag.
Growing up it was very much an non-disabled world from a child’s eyes, it wasn’t the topic of conversation over the dinner table and I think that’s how my mum wanted it to be, not for any reason of being ashamed but more to show my brother and myself that even though she had her … Continue reading I fight for disability rights for the future me’s
Being a disabled adult I am acutely aware of the many challenges i will face in life, becoming somewhat immune to forms of discrimination and aggression. I almost expect not to be able to get into a shop because there’s a step or two to get into the shop or the Ilys too small for … Continue reading Ask about my disability if your curious.
Today I’ve decided to keep it short and sweet all the while channelling positive vibes, as I think we could all do with a bit of positivity. it’s a great time to spread love and positivity. Let’s get straight into it. The power of positivity can create a huge impact on your life it’s an … Continue reading The Power of Positivity
With the UK slowly coming out of lockdown and re-opening all our lives will start to enter into a new normal of wearing face masks and social distancing. Following markers on shop floors, eating in restaurants and drinking in pubs will never be the same are you ready for this to become the new normal? … Continue reading Are you Accessible
Being disabled comes with it's own challenges but it also mean you can be judged very quickly by people before they have even said hello. Which is a natural human reaction that we all do, we have a tendency to stereotype and categorise people. My early 20’s I was full of confidence, carefree and didn’t … Continue reading You don’t have to prove yourself
This week is the end of diabetes awareness week so, I want to raise awareness of this condition and how you can live a normal life while managing your symptoms. Last year I was diagnosed with type 2 diabetes it was a shock at first but I have learned I can manage it with careful … Continue reading Diabetes & Me
This week is national Carers’ Week and the theme is ‘Making Carers Visible’. Did you know there is an estimated 6.5m people in the UK who care for a family or friend with a disability, mental or physical illness. All while being classed as being ‘unpaid’. Yes some may receive carers allowance at less than … Continue reading Brightly making carers visible
Sunday seems to come around so quickly again only feels like yesterday I was saying ‘Hi how are you, it’s Sunday AGAIN!’ During the last few months i have had waves of different emotions; as I am sure most of you have been feeling too, but this past week I have struggled with whether I … Continue reading A different world
Hey everyone welcome back, how are you doing? Adjusting to hanging out at home!? Even after this weeks announcement I know a few of us have made the decision to still stay in the safety of our own homes. Over the past 12 or so weeks I have been ask this question a lot so … Continue reading Hanging out at home
Welcome back, can you believe it’s Sunday already the weeks seem to be flying by! Have you ever wheeled/walked into a room to forget why? Misplaced an item to many times or just struggling to focus on a single task at time. Yes yes and absolutely I will totally hold my hands up more so … Continue reading Quarantine Brain
Welcome back everyone and not forgetting all you newbies also. Hi how are ya? Last week I wrote about my shocking experience with my local wheelchair services AJM Healthcare over a two year period to the present day, since then I have been inundated with messages and comments from other wheelchair uses about their own … Continue reading A broken system
Lied to, lied about, disrespected in my own home, bullied, complaints brushed under the carpet, advised to email only not to call anymore. All made by one company that says and I quote "We provide High-Quality, outcome-led, services in wheelchair & Community equipment" . There is a huge misconception that most people believe that when … Continue reading You Stole My Legs
I've said it many times before the disability world is very much a second thought and forgotten world. It's a subject I probably should have written about long before now, so why haven't I!? probably because when you spend so much time fighting for the simplest of things like going to the toilet you live … Continue reading A forgotten world
"Mental health matters" even more so today than ever before we need to protect our mental health, you will always have your sceptics that say it's just load rubbish man/women up your being dramatic there's nothing wrong with you! DON'T listen and don't try to reason with them it's not going to help your mental … Continue reading Celebrating kindness ~ Mental Health
This post is in collaboration with Femme Luxe Finery who kindly gifted me the pieces featured from their loungewear collection. All words and opinions are my own. Being a wheelchair user due to having muscular dystrophy a Progressive muscle wasting condition It’s hard to find a comfy outfit that works well for comfort as well … Continue reading Loungewear in a wheelchair
When will it end!? The question on everyone's mind. Although we have no idea when lockdown will finish for some of you it will end sooner than for some of us in the disability and shielded Community that may not happen until a vaccine has been found which could take until next year. However. I'm … Continue reading Feeling anxious about returning back to normal!!
Hey everyone welcome! I love nothing more than a good box set to binge watch or movie to get lost in the drama, we all know I don't stop talking about Self-Care especially right now it's important to take time for yourself, to put your comfy clothes on feet up . So here's just a … Continue reading What to watch in isolation
Hey everyone welcome back. Having a disability I'm just the same as everyone else some days I can sit and procrastinate trying to find that motivation, thinking about that one thing I really need to get done but just cant find that extra push to get it done, however. Being in isolation with not much … Continue reading 5 ways to motivate yourself
Welcome back everyone and if this is your first time hey there! Hope you're all staying safe and well in this difficult time. I've spoken in the past about self-care and why it's so important, everyday should be a self-care day, however. I completely understand right now it's very hard to focus on yourself because … Continue reading Self-Care Sunday
Let's get brutally honest it's nothing unusual that the disability world would be forgotten about or to be a second thought so why would it be any different now!? With thousands of disabled, elderly vulnerable individuals/families struggling to get food delivery slots, Supermarkets have now started offering the shielded Community a priority slot but this … Continue reading Have Supermarkets failed the disability world!
Hey everyone how are you. No really how are you?? don't just give the normal 'I'm okay' Speech if there's ever time to share how we are really feeling it's now! I don't know about you but the days have turned into weeks, weeks have turned into what Day of the week it is!! This … Continue reading Being Shielded
Right now we are spending more time at home than we've ever done before, but for some disabled people this is something relatively normal to them spending endless hours and days suck at home looking at the same four walls. I've spoken on several occasions about accessibility within the home being a disabled person myself … Continue reading Lockdown, Living in an Accessible home
It's safe to say right now we're all craving that human social attention. We're all finding new ways to Connect with love ones and friends. So let's all get more social let's reconnect with each other in a different way than sending a voice note, email, text message many other ways to connect. So here's … Continue reading Let’s get more Social!
Beginning another week in lock-down can be super tough on your mental health especially being Easter weekend and ordinarily we would of spent it enjoying the beautiful weather we've had probably would've been so much easier if it packed it down with rain! One of the biggest battles we face is our own thoughts especially … Continue reading Starting a new week.
So.. thing's are pretty strange right now for everyone. We're in spring; Easter is around the corner and the world is a mess. But in true British Fashion with a stiff upper lip as they said in the good old days 'We will get though this'. Until then ~ Spring has officially arrived where, we … Continue reading Ways to Spring Clean Your Body & Mind
Welcome back. well we've made it though another week I hope your all doing well! In this current situation it's easy to start feeling like the walls are closer than normal being at home or you could be totally taking this all in your stride and getting all those odd 'I've been meaning to do … Continue reading Things to keep you Occupied at home
Looking after your health is really important in everyday life but even more so right now, from your mental well-being to what your putting into your body. Figuring life out on your own can sometimes be hard and daunting and that's ok we don't come with a manual when we're born explaining the different stages … Continue reading App’s to help your Mental Health in lockdown
Disney+ has finally been released in the UK. Are you ready to get your Disney on?? I know I am. Now I won't lie to begin with when Hubby said that Disney was bringing out its own service like Netflix I was very much on the lines of do really we need another one no; … Continue reading Long awaited Disney +