Overcoming being self- conscious about using a power chair

If you already follow my journey though this crazy imperfect life, you will already know the exciting new i announced a week ago about receiving my new wheels, and if your new to my page welcome it nice to have you here. I think it’s easier for society to automatically think that if you’re aContinue reading “Overcoming being self- conscious about using a power chair”

Our Powers of Observation

Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,Continue reading “Our Powers of Observation”

Redefining the word ‘independence‘

I have written about the importance of Independence in the past and you will hear me in almost all of my interviews talking about it as well. But I read something the other day that made me think, so let me talk about independence in a different way! As children we all strived to becomeContinue reading “Redefining the word ‘independence‘”

I have my legs back!

Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinue reading “I have my legs back!”

Technology and disabled People

Technology is pretty much at our fingertips no matter where we turn these day, from Smart speakers, new smartphones coming out each year, cars with built-in wifi, and music and television can be accessed from almost anywhere. To some the idea of being unplugged and off grid can seem like something that exists only inContinue reading “Technology and disabled People”

Creating a good support system

As i am sure most disabled people will tell you creating a good support system is crucial, especially when life can sometimes feel like one big roller coaster ride we call life, whether you have an illness or not – without the right support system around you it can make a huge impact if it’sContinue reading “Creating a good support system”

Dear Muscular Dystrophy: Thank you for making me, me.

It’s my birthday, it’s okay I’m not expecting a surprise birthday party or for you all to sing me happy birthday showering me with gifts! As most of us are still grounded I’m thinking celebrating all month is completely acceptable. Yes?! As each year passes me by I like to make small changes or adjustmentsContinue reading “Dear Muscular Dystrophy: Thank you for making me, me.”

Choose to change!

It’s almost our day ladies! International Women’s Day is approaching that fast it’s tomorrow. While i think you should celebrate yourself every day, International Women’s Day is a great opportunity to reflect on being a woman while celebrating our achievements especially in a world that doesn’t really see us, disabled or not. This day isContinue reading “Choose to change!”