The Effects of Guilt on My Body and Mind

Would it surprise you if I was to say the most basic emotions related to Muscular Dystrophy (MD) and other chronic illnesses was Guilt. We all know that Guilt occurs when a person feels regret or shame in response to their actions (or inactions) in a particular situation. The feeling that they have gone againstContinue reading “The Effects of Guilt on My Body and Mind”

Why It’s Important to Give Yourself resting time With Muscular Dystrophy

You may have noticed last that last week I didn’t post – I took a little nosedive off the side of my bed one morning two weeks ago, and even though I was battered and bruised, and took a little trip to A&E, felt terrible, and knew I needed to rest as much as possibleContinue reading “Why It’s Important to Give Yourself resting time With Muscular Dystrophy”

To Care is to share!

The best way to care about someone or something is to share knowledge with or about it. This is just one of the reasons I started writing. However, before I jump ahead I need to revisit the day I received my diagnosis’s. I was diagnosed with FHL1 Gene Mutation a rare form of Muscular DystrophyContinue reading “To Care is to share!”

Who are you?

How would you respond if I asked, “Who are you?” While the question may seem simple, it can also be a deceiving and complex one. You would of course answer to the best of your ability, the same as I would, but if for argument sake what if I also offered “what ifs.” For instance,Continue reading “Who are you?”

Facing the physical transitions

Transitions are a part of life from the moment we’re born. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to university or start a new job. We get older, some of us have kids, and our perspectives change. When living with Muscular Dystrophy weContinue reading “Facing the physical transitions”

How to avoid falls

Some of you may have experienced a drunken fall on a night out, managed to get up, brush yourself down and move on with barely any scrapes or bruises. I may not have fallen in years, but I can still very clearly remember every fall I had. Where it was and how much time itContinue reading “How to avoid falls”

Reflections in Colour – Muscular Dystrophy UK

Muscular Dystrophy has always been very close to my heart, with my mum being diagnosed when I was a child and then myself when I was 24 with the same rare form of Muscular Dystrophy a progressive muscle wasting condition. So i’m sure you can imagine I was very honoured and excited when my friendContinue reading “Reflections in Colour – Muscular Dystrophy UK”

Life isn’t fair, but I can make the best of it

If we lived in a fair world, Muscular Dystrophy would not exist. But that also goes for all diseases, yes? Unfortunately, life isn’t fair. Life has a way of dealing you cards you wouldn’t of picked for yourself, I was diagnosed with the muscle-wasting disease 18 years ago. Even with an uncertain future, there’s noContinue reading “Life isn’t fair, but I can make the best of it”