If you follow my blog you’ll already know I have a rare form of muscular dystrophy and if not welcome. So It’s probably time I explained a little bit about MD maybe you know someone with MD. Or, maybe you’re new to the world of Muscular Dystrophy. You maybe surprised to know there are over … Continue reading What you need to know about muscular dystrophy.
It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
We all get stressed at some point or another everyone has their own ways of de-stressing, you can find a lot online that helps you like going to the gym, jogging, walking etc but when your in a wheelchair a little bit difficult to jump up stick your joggers on and run it off, not … Continue reading How to De~Stress when you can’t walk it off
When I started writing at a time in my life where I was struggling mentally, it became a way for me to express my feelings without the sense of worry of telling someone else about how I feel. I found comfort in writing my feelings down in black and white, I've come to realise it helps … Continue reading How writing helps my mental health
I was extremely lucky to get to write for Disability Living here's what I wrote for them. Adding to my accessible home post! Many of us fondly remember the image of a young farm girl, clicking the heels of her sparkling, ruby red slippers and longingly chanting the words, “There’s no place like home, there’s … Continue reading No place like an Accessible home!
Last week I sent out a tweet asking my twitter followers what I should write next. And a challenge was set by Fleur Perry : so I've decided not just to end the challenge with my but to carry it on the by tagging a few friends at the end! The challenge ~ Two Questions … Continue reading Challenge accepted!
Some Disabilities are in plan site to the naked eye, like mine for instance when you see me the first thing you see isn't my dazzling smile; it's my wheelchair. Then you have those with health conditions that can't be seen to the naked eye. Those disabilities are called invisible. You may not be able … Continue reading Invisible disabilities.
My journey with diabetes even though it's only been a few months I've had to change my life in different ways from now stabbing my fingers twice a day to get my blood sugars, taking medication daily and most of all throwing everything I know about food out the window. After the initial shock and … Continue reading Aloe Vera and my Diabetes type 2
In aid of Changing Places Awareness Day 19th July 2019 This will be my 3rd year celebrating the world of changing places, it's definitely been named by my husband, family and friends as my favourite subject to talk about! I kinda fell into Campaigning about changing Places toilets by mistake after reading an amazing blog … Continue reading Changing places and why I started campaigning!
I've had many trips and sleep overs (hubby likes to say I abandon him) at Milton Keynes university hospital in many different wards but it was my first experience staying on the high dependency unit. Due to an operation i underwent in April of this year I call it my fanny MOT. After my fanny … Continue reading HDU Ward 6 – Milton Keynes university hospital