How to avoid falls

Some of you may have experienced a drunken fall on a night out, managed to get up, brush yourself down and move on with barely any scrapes or bruises. I may not have fallen in years, but I can still very clearly remember every fall I had. Where it was and how much time itContinue reading “How to avoid falls”

Reflections in Colour – Muscular Dystrophy UK

Muscular Dystrophy has always been very close to my heart, with my mum being diagnosed when I was a child and then myself when I was 24 with the same rare form of Muscular Dystrophy a progressive muscle wasting condition. So i’m sure you can imagine I was very honoured and excited when my friendContinue reading “Reflections in Colour – Muscular Dystrophy UK”

Life isn’t fair, but I can make the best of it

If we lived in a fair world, Muscular Dystrophy would not exist. But that also goes for all diseases, yes? Unfortunately, life isn’t fair. Life has a way of dealing you cards you wouldn’t of picked for yourself, I was diagnosed with the muscle-wasting disease 18 years ago. Even with an uncertain future, there’s noContinue reading “Life isn’t fair, but I can make the best of it”

I am ready to move forward after my second jab

I am officially vaccinated up! Twelve weeks ago i had my first dose, i can finally say that on April 21st, I received my second dose of the AstraZeneca COVID-19 vaccine. According to AstraZeneca who confirms 100% protection against severe disease, hospitalisation and death in the primary analysis of phase III trials. Like most vaccinationsContinue reading “I am ready to move forward after my second jab”

An open letter to muscular dystrophy parents

It’s easy for me to sit here writing about my experiences when it comes to living with muscular dystrophy but what about the parents that live though every fall, slip, hospital appointment. Muscular dystrophy can affect all ages at any point in life. Whether your child has been living with muscular dystrophy for years orContinue reading “An open letter to muscular dystrophy parents”

Overcoming being self- conscious about using a power chair

If you already follow my journey though this crazy imperfect life, you will already know the exciting new i announced a week ago about receiving my new wheels, and if your new to my page welcome it nice to have you here. I think it’s easier for society to automatically think that if you’re aContinue reading “Overcoming being self- conscious about using a power chair”

Our Powers of Observation

Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,Continue reading “Our Powers of Observation”

Redefining the word ‘independence‘

I have written about the importance of Independence in the past and you will hear me in almost all of my interviews talking about it as well. But I read something the other day that made me think, so let me talk about independence in a different way! As children we all strived to becomeContinue reading “Redefining the word ‘independence‘”