Accepting a new normal when I was just feeling like I had found my feet... well wheels! ‘Normal’ what does that even mean and does it really exist? Everyone’s normal is different or we would all be boring. plus life has this way of dealing us different cards of change from time to time whether … Continue reading Accepting a new normal
Independence. What does that one single word mean to you? Most people take their Independence for granted - that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyed … Continue reading Freedom is more than Just a state of mind, it’s my wheelchair
Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane - unfortunately having Muscular Dystrophy myself I need to know my limits … Continue reading Challenging myself – while fundraising for Muscular Dystrophy
Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition - If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time I … Continue reading My life with Myofibrillar Myopathy – Muscular Dystrophy
I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat the … Continue reading Being disabled doesn’t automatically mean I should be depressed
This is a subject that I’m coming across a lot more lately whether it’s online or in conversation - the social model of disability. What does it actually mean? Many people that are disabled see it in different ways, why because one size doesn’t fit all, in other words, each person’s disabilities affects them in … Continue reading Is it disability or accessibility – The social model
Having a disability isn’t a weakness, it should be seen as a strength. What does the word disability mean to you? When you look at someone with a disability what do you see strength or weakness. Is the first thing that pops into your mind ‘oh bless it must be hard’ or ‘I’m glad I’m … Continue reading Having a disability isn’t a weakness
I have always loved the thought of being able to travel back in time to maybe the roaring 20s or the flower power age of the ’70s, even 18th Century could be interesting but especially travelling along the course of my own life. I think it's got a lot to do with recognizing how much … Continue reading A letter to my 10 year old self.