Is my marriage defined by my disability!? Even up to the day of saying I Do I asked hubby to be if he was totally sure that he wanted to marry me, not for your normal wedding jitter ￼reasons like do you really love me, will you be fateful, this is forever questions. None of … Continue reading Our marriage & Muscular Dystrophy
I've written a few times about how not having an accessible home when you have a disability can be just as detrimental to your health as having a disability. Once you have an accessible home that works for you I.e wet room (walk in bathroom) wide doors, accessible kitchen with a rise and drop sides … Continue reading Accessibility within your home.
'Building Better, Building Beautiful' These are the words the Government have used in a new report announced ￼￼this week, MP Robert Jenrick even used the words 'building beautiful must become the norm'. When I read the full report hoping that finally we were going to see the government stepping up, by seeing that accessible homes … Continue reading A beautiful home, A beautiful Accessible home
Your identity ￼is everything it's the person you are, the person you identify￼￼ with and when you lose your identity who are!? As humans in a complex world of boundaries and decisions￼￼, it's really not all that surprising that by trying to make sense of it all we put everyone and everything into groups, categories￼ … Continue reading My Disability, My Identity
The tree is up, I'm mostly done with all my Christmas shopping! ￼Shopping￼; it's something of a must￼ at Christmas unless you're Scrooge, ￼ picking out the right present for a fussy family member or finding the ￼cheesiest￼ present you can for your best friend, It can also be one of the most stressful times … Continue reading Countdown to Christmas
Having a Disabilty I've found people are always have a natural Curiosity to how I do things, over the years of having a muscular dystrophy a Progressive condition I've adapted many times over the years how I do certain things! A while back my fab friend Fi from Life of an Ambitious Turtle wrote a great post … Continue reading 5 Things I Do Differently Living With Muscular Dystrophy
It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
I was extremely lucky to get to write for Disability Living here's what I wrote for them. Adding to my accessible home post! Many of us fondly remember the image of a young farm girl, clicking the heels of her sparkling, ruby red slippers and longingly chanting the words, “There’s no place like home, there’s … Continue reading No place like an Accessible home!
For me being disabled means a lot of things. It means I am reliant on my powered wheelchair to act as my legs for the rest of my life. It means I can often attend several hospital and physio appointments just in the space of a week. It means I use medical equipment to keep … Continue reading Is feeling like a second class citizen ok!?
Some Disabilities are in plan site to the naked eye, like mine for instance when you see me the first thing you see isn't my dazzling smile; it's my wheelchair. Then you have those with health conditions that can't be seen to the naked eye. Those disabilities are called invisible. You may not be able … Continue reading Invisible disabilities.