I have my legs back!

Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinue reading “I have my legs back!”

As an adult with Muscular dystrophy, i have a responsibility.

I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”

Choose to change!

It’s almost our day ladies! International Women’s Day is approaching that fast it’s tomorrow. While i think you should celebrate yourself every day, International Women’s Day is a great opportunity to reflect on being a woman while celebrating our achievements especially in a world that doesn’t really see us, disabled or not. This day isContinue reading “Choose to change!”

Representation matters

Representation. As a disabled person I know what that one word means to me, but what does it mean to you? As human beings what we visually see can make a huge impact on our lives and if you’re visually impaired you rely on someone to describe what they are seeing, so what impact doesContinue reading “Representation matters”

What advice do you wish someone would’ve given you as a disabled person?

It’s a question i have sat (pun intended) pondering about many times, what advice could i give myself or wish someone would have given me when navigating or transitioning from the non-disabled into the disabled world and in all honestly even now. There is no wrong or right answer as the advice can be given,Continue reading “What advice do you wish someone would’ve given you as a disabled person?”

My advance care plan

Advance Care Plan – the conversation no one wants to have, but really should be having – is there a misconception of what this booklet actually is? I am fully aware that death will come for me at some point in life especially living with a rare form of Muscular dystrophy a progressive muscle weakeningContinue reading “My advance care plan”

Lessons we shouldn’t forget

Like most in the disabled community I have not stopped shielding throughout this pandemic – but amongst the unforgettable tragedies there have been some valuable lessons that hopefully won’t be lost or forgotten. It’s important to remember that the 13.9 million disabled people living in the UK have been adapting their lives for many yearsContinue reading “Lessons we shouldn’t forget”

Part 1 – Why can’t we access a smear test?

Let’s talk…. This is a subject we need to talk more openly about, and that does mean ALL genders. it’s not a subject we should or can shy away from – yes it’s one of those taboo subjects that people in all walks of life struggle to talk about. The lack of access to smearContinue reading “Part 1 – Why can’t we access a smear test?”