Facing the physical transitions

Transitions are a part of life from the moment we’re born. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to university or start a new job. We get older, some of us have kids, and our perspectives change. When living with Muscular Dystrophy weContinue reading “Facing the physical transitions”

Our accessible home anniversary

Wow I can’t actually believe we are in May where has the time gone!? The first weekend in may ‘bank holiday weekend’ is a special memory for hubby and i, but more for me it was the weekend we finally moved into our accessible home provided by Habinteg – I have spoken a few timesContinue reading “Our accessible home anniversary”

I am ready to move forward after my second jab

I am officially vaccinated up! Twelve weeks ago i had my first dose, i can finally say that on April 21st, I received my second dose of the AstraZeneca COVID-19 vaccine. According to AstraZeneca who confirms 100% protection against severe disease, hospitalisation and death in the primary analysis of phase III trials. Like most vaccinationsContinue reading “I am ready to move forward after my second jab”

I have my legs back!

Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinue reading “I have my legs back!”

Muscular Dystrophy and fatigue

Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinue reading “Muscular Dystrophy and fatigue”

Creating a good support system

As i am sure most disabled people will tell you creating a good support system is crucial, especially when life can sometimes feel like one big roller coaster ride we call life, whether you have an illness or not – without the right support system around you it can make a huge impact if it’sContinue reading “Creating a good support system”

As an adult with Muscular dystrophy, i have a responsibility.

I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”

Life lessons I’ve learnt being disabled

Spoiler alert: Being disabled means living in a society that wasn’t designed with mine or other disabled people’s needs in mind. That first sentence may sound rather harsh but in reality very true, there is no other way to describe it from a disabled person’s point of view – It can create difficult situations, andContinue reading “Life lessons I’ve learnt being disabled”