13 years to long!

Disclaimer: This is an article written for GM Coachwork, all words & experiences are the writers own. 60.9 miles (1 hour 12 minutes) that’s the distance between mother and daughter. It’s not oceans away or flights apart. But it is far enough away that my little go-kart (powered wheelchair) wouldn’t make it on it’s own.Continue reading “13 years to long!”

UKDHM – Sex, Relationships!

UK Disability History Month is upon us and never has disability inclusion been more important – in it’s 12th Year, 2021 is from 18th November till 18th December. It’s an annual event, which provides a platform to focus on the past and present history of disabled people’s fight for equality and human rights. Most ofContinue reading “UKDHM – Sex, Relationships!”

Disabled people struggling to hire carers & PA’s

This is a subject that doesn’t seem to disappear within the disabled and elderly community – the struggle to hire carers or PA’s to help with vital daily tasks. According to a report published in October, an estimated 70,000 care users employ around 100,000 live-in carers and personal assistants (PAs) through public funds, via aContinue reading “Disabled people struggling to hire carers & PA’s”

AccessAble – An Accessibility Guide

AccessAble App/Website – an accessibility guide that could change your life! Going out is as simple as picking a place, grabbing your keys, purse/Wallet maybe a jacketed if it’s chilly. Oh how I/many would love to say yes this is totally what happens. Being disabled you become a master planner. Research can be key toContinue reading “AccessAble – An Accessibility Guide”

My journey, my new WAV!

Blue badge at the ready ‘In the words of William Wallace ‘FREEDOM’ Ever been so excited about something you can’t help but think you might burst – I was like a kid in a sweet shop the day my shiny new WAV (wheelchair accessible vehicle) was delivered. Normally I am a very patient person whenContinue reading “My journey, my new WAV!”

Why It’s Important to Give Yourself resting time With Muscular Dystrophy

You may have noticed last that last week I didn’t post – I took a little nosedive off the side of my bed one morning two weeks ago, and even though I was battered and bruised, and took a little trip to A&E, felt terrible, and knew I needed to rest as much as possibleContinue reading “Why It’s Important to Give Yourself resting time With Muscular Dystrophy”

To Care is to share!

The best way to care about someone or something is to share knowledge with or about it. This is just one of the reasons I started writing. However, before I jump ahead I need to revisit the day I received my diagnosis’s. I was diagnosed with FHL1 Gene Mutation a rare form of Muscular DystrophyContinue reading “To Care is to share!”

Leaving a legacy

Leaving a legacy’ is this something you have thought about? Because for me It’s not something I can say has ever crossed my mind. Until now! I would even go a far as to say. I probably would’ve told you I don’t have any children and don’t choose to have any children, so I wouldn’tContinue reading “Leaving a legacy”