Muscular Dystrophy and fatigue

Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinue reading “Muscular Dystrophy and fatigue”

Muscular Dystrophy – keeping your muscles moving!

Exercising, easy right? – as simple as putting on your lycra outfit, sweat bands and saying ‘okay let’s do this’ with Olivia Newton-John ‘let’s get physical’ playing in the background. But how realistic is that for many disabled people right now? Especially at the moment if your unable to do any exercise or get outsideContinue reading “Muscular Dystrophy – keeping your muscles moving!”

I can now see an end

I am going to try and keep this as short and sweet as i can because i know there are still so many disabled and non-disabled people waiting for the vaccine and i know from my own experience as much as i was delighted to see so many friends get their jab date it wasContinue reading “I can now see an end”

Part 1 – Why can’t we access a smear test?

Let’s talk…. This is a subject we need to talk more openly about, and that does mean ALL genders. it’s not a subject we should or can shy away from – yes it’s one of those taboo subjects that people in all walks of life struggle to talk about. The lack of access to smearContinue reading “Part 1 – Why can’t we access a smear test?”

Is Ignorance really bliss!

The saying ‘Ignorance is bliss‘ but Is it when that ignorance is potentially harming others? Most people that know or follow me know that I’m extremely active when it comes to fighting for an inclusive world, not just for myself but other disabled people whether it’s visible or non-visible, so as you can imagine theContinue reading “Is Ignorance really bliss!”

My boobs and my disability

Well ladies let’s talk tits, boobs or breast. Whatever you like to call them it’s a subject we should definitely warm our hands up to and Cop-a-feel, well that’s what all the adverts and professionals say checking yourself regularly is a good thing but that’s all fair and well – unless you’re physically unable to,Continue reading “My boobs and my disability”

Rolling up your sleeve – Free Flu jab

It’s that time of year again, even though it feels like yesterday I was last jabbed in the arm – most of us are use/waiting to receive a text message or a call from our GP surgery inviting us for the annual arm jab. This year will be very different when it comes to havingContinue reading “Rolling up your sleeve – Free Flu jab”