Sharing in times of need.

Being disabled sometimes comes with a short or long list of needs It can feel like a military operation just leaving the house – well that’s if you’re anything like me and that doesn’t include my Mary Poppins handbag with the kitchen sink! Whether it’s equipment or supplies it’s not something we can just sayContinue reading “Sharing in times of need.”

Challenging myself – while fundraising for Muscular Dystrophy

Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”

Being disabled doesn’t automatically mean I should be depressed

I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat theContinue reading “Being disabled doesn’t automatically mean I should be depressed”

Is it disability or accessibility – The social model

This is a subject that I’m coming across a lot more lately whether it’s online or in conversation – the social model of disability. What does it actually mean? Many people that are disabled see it in different ways, why because one size doesn’t fit all, in other words, each person’s disabilities affects them inContinue reading “Is it disability or accessibility – The social model”

Having a disability isn’t a weakness

Having a disability isn’t a weakness, it should be seen as a strength. What does the word disability mean to you? When you look at someone with a disability what do you see strength or weakness. Is the first thing that pops into your mind ‘oh bless it must be hard’ or ‘I’m glad I’mContinue reading “Having a disability isn’t a weakness”

The barriers we face as disabled people

Have you ever had a moment where your face tells a thousand stories, that real eye-rolling moment in a conversation when someone says ‘oh I know just how you feel I once had an injury and couldn’t do anything for weeks’, I don’t know about you but I can pretty much tell when someone isContinue reading “The barriers we face as disabled people”

Are you being Ableist – And don’t even know it.

Ableism This is definitely a word I’m seeing pop up more and more, but this word has always been lurking in the corners as if it’s waiting to say ‘remember me’. It has played a very significant role in all of my life even before I was diagnosed with Muscular Dystrophy because I grow upContinue reading “Are you being Ableist – And don’t even know it.”