Challenging myself – while fundraising for Muscular Dystrophy

Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”

Being disabled doesn’t automatically mean I should be depressed

I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat theContinue reading “Being disabled doesn’t automatically mean I should be depressed”

BIG announcements for Changing Places

It would be pretty unusual if I didn’t talk about my favourite subject on today of all days Changing Places awareness day! My journey with Changing Places started with a blog I wrote in 2017 it seems like such a long time ago but in reality, it was 3 years ago. After reading a blogContinue reading “BIG announcements for Changing Places”

My personal Independence payment and decision

Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn’t expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment processContinue reading “My personal Independence payment and decision”

MDUK President’s Award ~ Campaigner of the year 2019.

It’s been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I’ve stolen somebody else’s life and someone’s going to pop up from behind the bushes saying I’d like my life back now please!Continue reading “MDUK President’s Award ~ Campaigner of the year 2019.”

Invisible disabilities.

  Some Disabilities are in plan site to the naked eye, like mine for instance when you see me the first thing you see isn’t my dazzling smile; it’s my wheelchair. Then you have those with health conditions that can’t be seen to the naked eye. Those disabilities are called invisible. You may not be ableContinue reading “Invisible disabilities.”

Changing places and why I started campaigning!

In aid of Changing Places Awareness Day 19th July 2019 This will be my 3rd year celebrating the world of changing places, it’s definitely been named by my husband, family and friends as my favourite subject to talk about! I kinda fell into Campaigning about changing Places toilets by mistake after reading an amazing blogContinue reading “Changing places and why I started campaigning!”

My Cough Assist machine

I like my Life to be full of smiles and laughter… But I want to share apart of my life I don’t normally show everyone, not because I’m ashamed or scared of what others may say, And I’m definitely not looking for any sympathy as this is my life and I’m ok with that it’sContinue reading “My Cough Assist machine”