Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn't expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment process … Continue reading My personal Independence payment and decision￼￼￼￼
It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
Some Disabilities are in plan site to the naked eye, like mine for instance when you see me the first thing you see isn't my dazzling smile; it's my wheelchair. Then you have those with health conditions that can't be seen to the naked eye. Those disabilities are called invisible. You may not be able … Continue reading Invisible disabilities.
In aid of Changing Places Awareness Day 19th July 2019 This will be my 3rd year celebrating the world of changing places, it's definitely been named by my husband, family and friends as my favourite subject to talk about! I kinda fell into Campaigning about changing Places toilets by mistake after reading an amazing blog … Continue reading Changing places and why I started campaigning!
I like my Life to be full of smiles and laughter... But I want to share apart of my life I don’t normally show everyone, not because I'm ashamed or scared of what others may say, And I'm definitely not looking for any sympathy as this is my life and I'm ok with that it's … Continue reading My Cough Assist machine
What happens when a service that's meant to keep you safe in your home massively let's you down in ways that leaves you feeling scared to enter your own home! I have so many emotions to process anger, disappointment, frustrated, violated, lied too, scared my list is endless and I don't know how to stop … Continue reading A service that has massively failed me.
It's been over a year in the making but we finely made it, as of the 7th January I set a new milestone in my life living with Muscular Dystrophy. It's only ever been hubby and I battling though learning and adjusting as my condition gradually progressives as the years go by. I have a … Continue reading Setting new milestone with a personal assistant.
The day has finally arrived where I can share with the world, shout it from the roof tops... YES it's true I've been keeping a big secret since June 2018, As much as it was going to kill me to keep this secret I knew I had to, it was far to important to risk … Continue reading My secret with Tesco supermarket!!
Well can you believe we are just about to wave goodbye to 2018 going into 2019 or maybe some people are sticking their fingers up to it!. it doesn't feel real anyone else feel that way? where did this year go!? My 2018 break down 2018 started with a beautiful family wedding, but unfortunately it … Continue reading Reflection on 2018
A quote "Circus Starr - the Circus with a purpose" And how true is this quote - circus Starr goes above and beyond to make everyone feel included from wheelchair users like myself to the visually impaired with auto descript headphones. It's been a few weeks now since I went to see Circus Starr i … Continue reading Roll up, roll up! Circus Starr has come to Milton Keynes!