Who are you?

How would you respond if I asked, “Who are you?” While the question may seem simple, it can also be a deceiving and complex one. You would of course answer to the best of your ability, the same as I would, but if for argument sake what if I also offered “what ifs.” For instance,Continue reading “Who are you?”

Facing the physical transitions

Transitions are a part of life from the moment we’re born. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to university or start a new job. We get older, some of us have kids, and our perspectives change. When living with Muscular Dystrophy weContinue reading “Facing the physical transitions”

How to avoid falls

Some of you may have experienced a drunken fall on a night out, managed to get up, brush yourself down and move on with barely any scrapes or bruises. I may not have fallen in years, but I can still very clearly remember every fall I had. Where it was and how much time itContinue reading “How to avoid falls”

Reflections in Colour – Muscular Dystrophy UK

Muscular Dystrophy has always been very close to my heart, with my mum being diagnosed when I was a child and then myself when I was 24 with the same rare form of Muscular Dystrophy a progressive muscle wasting condition. So i’m sure you can imagine I was very honoured and excited when my friendContinue reading “Reflections in Colour – Muscular Dystrophy UK”

I have my legs back!

Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinue reading “I have my legs back!”

What having Muscular Dystrophy feels like

Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinue reading “What having Muscular Dystrophy feels like”

Choose to change!

It’s almost our day ladies! International Women’s Day is approaching that fast it’s tomorrow. While i think you should celebrate yourself every day, International Women’s Day is a great opportunity to reflect on being a woman while celebrating our achievements especially in a world that doesn’t really see us, disabled or not. This day isContinue reading “Choose to change!”

Yes I am rare!

Have you heard of Rare Disease Day? No, well you’re in luck because it’s today. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases, the campaign also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone whoContinue reading “Yes I am rare!”