I’ve never been this ill before even with having Muscular Dystrophy

It’s now been over a month since I came out of Milton Keynes university hospital after spending 3 weeks In their care, it’s been a struggle adapting back into home life, finding the energy to be stood up and being put into my chair has been hard work let alone getting washed and dressed IContinue reading “I’ve never been this ill before even with having Muscular Dystrophy”

From swollen feet to sexy feet ~ Lymphoedema

I don’t know any girl that doesn’t get over excited and fall in love with a pretty pair of shoes, I know I’m one. Up until 2 and half years ago pretty shoes where our of my reach and just there for me to admire wishing I could wear, both my feet where swollen andContinue reading “From swollen feet to sexy feet ~ Lymphoedema”

New found heroine – The Disabled Suffragette.

As this year marks a 100 years since women won the right to vote as I was reading about the suffragette I found a story about Rosa May Billinghurst the disabled suffragette and women’s rights activist she was known as the ‘cripple suffragette’ I found myself wanting to know more about Rosa may Billinghurst andContinue reading “New found heroine – The Disabled Suffragette.”

As my body changes, so do my needs.

As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other’s are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change’s when your living withContinue reading “As my body changes, so do my needs.”

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinue reading “Walking to wheelchair – my story of transitioning.”

How Aloe Vera help’s me.

It’s crazy to think that this funny looking green plant has so many healing ways, We’ve all heard of the aloe vera plant it really wouldn’t surprise me if you have a plant called vera tucked away on a window sill somewhere, I was first introduced to this healing wonder by my mummy, “I’ve gotContinue reading “How Aloe Vera help’s me.”

Being proud of who you are.

I’ve not been disabled my entire life, Some people’s responses are often different some positive some sound condescending. I’m not one to generally bring up in conversation about being disabled with new groups of people, not because it bothers me more because it can create an awkward atmosphere for others. people can give you the “awwContinue reading “Being proud of who you are.”

Most people take for granted but for some of us it’s the thing of nightmares!!

Theses days just wheeling out the door its a check list of have we got everything, before hubby Fort Knox the door behind us! kinda reminds me of a new mum packing half the house while muttering away at the baby we’ll take this just in case…that’s pretty much my life!! When your planning aContinue reading “Most people take for granted but for some of us it’s the thing of nightmares!!”