Our Powers of Observation

Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,Continue reading “Our Powers of Observation”

What having Muscular Dystrophy feels like

Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinue reading “What having Muscular Dystrophy feels like”

Life lessons I’ve learnt being disabled

Spoiler alert: Being disabled means living in a society that wasn’t designed with mine or other disabled people’s needs in mind. That first sentence may sound rather harsh but in reality very true, there is no other way to describe it from a disabled person’s point of view – It can create difficult situations, andContinue reading “Life lessons I’ve learnt being disabled”

Mental health – let’s talk

Mental health is something that I have spoken about and been very open and honest about my own struggles but it has been awhile – Right now our mental health and wellbeing is a topic that we really need to be addressing, so with no better time like the present. Let’s talk. Unfortunately mental healthContinue reading “Mental health – let’s talk”

Muscular Dystrophy – keeping your muscles moving!

Exercising, easy right? – as simple as putting on your lycra outfit, sweat bands and saying ‘okay let’s do this’ with Olivia Newton-John ‘let’s get physical’ playing in the background. But how realistic is that for many disabled people right now? Especially at the moment if your unable to do any exercise or get outsideContinue reading “Muscular Dystrophy – keeping your muscles moving!”

Are the ‘don’ts’ helping?

We always hear about the ‘don’ts’ when it comes to talking about living with a disability/impairment and full disclosure I have written something in the past. You’ll see them pop up often enough: “10 things not to say to someone with a disability/impairment”, or “10 things you shouldn’t say to someone in a wheelchair” TheyContinue reading “Are the ‘don’ts’ helping?”

Part 2 – Struggling to access a smear test? What you can do.

Last week I spoke openly about the barriers to cervical screening for all genders with a disability/impairment – for something that is classed as a routine procedure and offered to all genders with a cervix from the age of 25 there is still huge barriers to over come before we get it right for everyoneContinue reading “Part 2 – Struggling to access a smear test? What you can do.”

Lessons we shouldn’t forget

Like most in the disabled community I have not stopped shielding throughout this pandemic – but amongst the unforgettable tragedies there have been some valuable lessons that hopefully won’t be lost or forgotten. It’s important to remember that the 13.9 million disabled people living in the UK have been adapting their lives for many yearsContinue reading “Lessons we shouldn’t forget”