My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”

The barriers we face as disabled people

Have you ever had a moment where your face tells a thousand stories, that real eye-rolling moment in a conversation when someone says ‘oh I know just how you feel I once had an injury and couldn’t do anything for weeks’, I don’t know about you but I can pretty much tell when someone isContinue reading “The barriers we face as disabled people”

BIG announcements for Changing Places

It would be pretty unusual if I didn’t talk about my favourite subject on today of all days Changing Places awareness day! My journey with Changing Places started with a blog I wrote in 2017 it seems like such a long time ago but in reality, it was 3 years ago. After reading a blogContinue reading “BIG announcements for Changing Places”

Using a disabled toilet when you don’t need to

Anyone that knows me, knows that my favourite subject is talking toilets yes it’s a strange subject to get my wheels excited about I know. But not just any old toilets you’ll find me normally talking about changing places but this time around I want to talk about all accessible toilets. And a subject thatContinue reading “Using a disabled toilet when you don’t need to”

A different world

Sunday seems to come around so quickly again only feels like yesterday I was saying ‘Hi how are you, it’s Sunday AGAIN!’ During the last few months i have had waves of different emotions; as I am sure most of you have been feeling too, but this past week I have struggled with whether IContinue reading “A different world”