Transitions are a part of life from the moment we’re born. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to university or start a new job. We get older, some of us have kids, and our perspectives change. When living with Muscular Dystrophy weContinue reading “Facing the physical transitions”
Tag Archives: disabilities
How to avoid falls
Some of you may have experienced a drunken fall on a night out, managed to get up, brush yourself down and move on with barely any scrapes or bruises. I may not have fallen in years, but I can still very clearly remember every fall I had. Where it was and how much time itContinue reading “How to avoid falls”
Why we still need awareness.
Hey everyone, welcome back. Let’s talk about awareness. You may, or may not know we have a few coming up over the next few months like the month of June is ‘Carers Week’ and July is ‘Disability Pride’. You might have very mixed feelings when it comes to all the awareness around disability but everyContinue reading “Why we still need awareness.”
Our Powers of Observation
Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,Continue reading “Our Powers of Observation”
What having Muscular Dystrophy feels like
Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinue reading “What having Muscular Dystrophy feels like”
Life lessons I’ve learnt being disabled
Spoiler alert: Being disabled means living in a society that wasn’t designed with mine or other disabled people’s needs in mind. That first sentence may sound rather harsh but in reality very true, there is no other way to describe it from a disabled person’s point of view – It can create difficult situations, andContinue reading “Life lessons I’ve learnt being disabled”
Mental health – let’s talk
Mental health is something that I have spoken about and been very open and honest about my own struggles but it has been awhile – Right now our mental health and wellbeing is a topic that we really need to be addressing, so with no better time like the present. Let’s talk. Unfortunately mental healthContinue reading “Mental health – let’s talk”
Muscular Dystrophy – keeping your muscles moving!
Exercising, easy right? – as simple as putting on your lycra outfit, sweat bands and saying ‘okay let’s do this’ with Olivia Newton-John ‘let’s get physical’ playing in the background. But how realistic is that for many disabled people right now? Especially at the moment if your unable to do any exercise or get outsideContinue reading “Muscular Dystrophy – keeping your muscles moving!”