Tag Archives: MDUK

As my body changes, so do my needs.

As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other’s are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change’s when your living withContinueContinue reading “As my body changes, so do my needs.”

Christmas is over – new year has started

As lovely as it’s been to sit back and relax over the Christmas period, there needs to be a time where you have to get back to reality put the tree away for another year, start planning the next 12 months. And of course let’s no forget It’s that time of year where all youContinueContinue reading “Christmas is over – new year has started”

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinueContinue reading “Walking to wheelchair – my story of transitioning.”