It's been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I've stolen somebody else's life and someone's going to pop up from behind the bushes saying I'd like my life back now please! … Continue reading MDUK President’s Award ~ Campaigner of the year 2019.
When I started writing at a time in my life where I was struggling mentally, it became a way for me to express my feelings without the sense of worry of telling someone else about how I feel. I found comfort in writing my feelings down in black and white, I've come to realise it helps … Continue reading How writing helps my mental health
For me being disabled means a lot of things. It means I am reliant on my powered wheelchair to act as my legs for the rest of my life. It means I can often attend several hospital and physio appointments just in the space of a week. It means I use medical equipment to keep … Continue reading Is feeling like a second class citizen ok!?
Some Disabilities are in plan site to the naked eye, like mine for instance when you see me the first thing you see isn't my dazzling smile; it's my wheelchair. Then you have those with health conditions that can't be seen to the naked eye. Those disabilities are called invisible. You may not be able … Continue reading Invisible disabilities.
In aid of Changing Places Awareness Day 19th July 2019 This will be my 3rd year celebrating the world of changing places, it's definitely been named by my husband, family and friends as my favourite subject to talk about! I kinda fell into Campaigning about changing Places toilets by mistake after reading an amazing blog … Continue reading Changing places and why I started campaigning!
Let's talk smear tests and well everything lady parts! Im going to do a two parter post, The why I had to have an operation and the hospital ward I spent 24 hours on. On Tuesday the 23rd April I under went surgery where I was put under General anesthesia. If your unsure what General anesthesia is, it's … Continue reading My Operation – A fanny MOT!
What happens when a service that's meant to keep you safe in your home massively let's you down in ways that leaves you feeling scared to enter your own home! I have so many emotions to process anger, disappointment, frustrated, violated, lied too, scared my list is endless and I don't know how to stop … Continue reading A service that has massively failed me.
It's been over a year in the making but we finely made it, as of the 7th January I set a new milestone in my life living with Muscular Dystrophy. It's only ever been hubby and I battling though learning and adjusting as my condition gradually progressives as the years go by. I have a … Continue reading Setting new milestone with a personal assistant.
Well can you believe we are just about to wave goodbye to 2018 going into 2019 or maybe some people are sticking their fingers up to it!. it doesn't feel real anyone else feel that way? where did this year go!? My 2018 break down 2018 started with a beautiful family wedding, but unfortunately it … Continue reading Reflection on 2018
Rejections; an emotion that's never top of our list to feel. You have all kinds of rejections from a job you wanted but didn't get to a partner or friend, then the rejection I'm feeling from a parent. No matter what type of rejection it is it's never easy. I don't know if it's just … Continue reading The feeling of rejection!