This is a subject that doesn’t seem to disappear within the disabled and elderly community – the struggle to hire carers or PA’s to help with vital daily tasks. According to a report published in October, an estimated 70,000 care users employ around 100,000 live-in carers and personal assistants (PAs) through public funds, via aContinue reading “Disabled people struggling to hire carers & PA’s”
Tag Archives: Living
Leaving a legacy
Leaving a legacy’ is this something you have thought about? Because for me It’s not something I can say has ever crossed my mind. Until now! I would even go a far as to say. I probably would’ve told you I don’t have any children and don’t choose to have any children, so I wouldn’tContinue reading “Leaving a legacy”
Reflections in Colour – Muscular Dystrophy UK
Muscular Dystrophy has always been very close to my heart, with my mum being diagnosed when I was a child and then myself when I was 24 with the same rare form of Muscular Dystrophy a progressive muscle wasting condition. So i’m sure you can imagine I was very honoured and excited when my friendContinue reading “Reflections in Colour – Muscular Dystrophy UK”
Life isn’t fair, but I can make the best of it
If we lived in a fair world, Muscular Dystrophy would not exist. But that also goes for all diseases, yes? Unfortunately, life isn’t fair. Life has a way of dealing you cards you wouldn’t of picked for yourself, I was diagnosed with the muscle-wasting disease 18 years ago. Even with an uncertain future, there’s noContinue reading “Life isn’t fair, but I can make the best of it”
Redefining the word ‘independence‘
I have written about the importance of Independence in the past and you will hear me in almost all of my interviews talking about it as well. But I read something the other day that made me think, so let me talk about independence in a different way! As children we all strived to becomeContinue reading “Redefining the word ‘independence‘”
Muscular Dystrophy and fatigue
Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinue reading “Muscular Dystrophy and fatigue”
My body is ready for better weather!
Clocks have changed, nights are getting long does this hopefully mean better weather is on it’s way too. My wheels are crossed and my body is ready! Don’t get to excited i’m about to pull out my bikini and flash flesh, have you tried wearing a bikini in a wheelchair i have definitely not masteredContinue reading “My body is ready for better weather!”
What having Muscular Dystrophy feels like
Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinue reading “What having Muscular Dystrophy feels like”
Kerry Thompson - My Life, Kerry's Way. 