What my wheelchair has taught me about life.

Everyday is a life lesson some way or another. I have a rare form of Muscular Dystrophy a progressive muscle wasting condition I use a wheelchair 24/7, 365 days of the year unless we have a leap year of course. That has been my reality of more than two and a bit decades. But myContinueContinue reading “What my wheelchair has taught me about life.”

Accepting a new normal

Accepting a new normal when I was just feeling like I had found my feet… well wheels! ‘Normal’ what does that even mean and does it really exist? Everyone’s normal is different or we would all be boring. plus life has this way of dealing us different cards of change from time to time whetherContinueContinue reading “Accepting a new normal”

Freedom is more than Just a state of mind, it’s my wheelchair

Independence. What does that one single word mean to you? Most people take their Independence for granted – that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyedContinueContinue reading “Freedom is more than Just a state of mind, it’s my wheelchair”

Challenging myself – while fundraising for Muscular Dystrophy

Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinueContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinueContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”

Being disabled doesn’t automatically mean I should be depressed

I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat theContinueContinue reading “Being disabled doesn’t automatically mean I should be depressed”

Is it disability or accessibility – The social model

This is a subject that I’m coming across a lot more lately whether it’s online or in conversation – the social model of disability. What does it actually mean? Many people that are disabled see it in different ways, why because one size doesn’t fit all, in other words, each person’s disabilities affects them inContinueContinue reading “Is it disability or accessibility – The social model”

Having a disability isn’t a weakness

Having a disability isn’t a weakness, it should be seen as a strength. What does the word disability mean to you? When you look at someone with a disability what do you see strength or weakness. Is the first thing that pops into your mind ‘oh bless it must be hard’ or ‘I’m glad I’mContinueContinue reading “Having a disability isn’t a weakness”