The ever changing life living with Muscular Dystrophy

Life can change in the flash of a moment. Something we learn to adapt to whether you are the picture of perfect health or living with a disability/impairment. My life is certainly no exception of this, life certainly isn’t predictable or come with a handbook to guide you through the timelines of life, it canContinueContinue reading “The ever changing life living with Muscular Dystrophy”

International Day of disabled persons – Inclusion Is Long Overdue

With an estimated one billion disabled people living with visible and invisible disabilities/impairments worldwide and 14.1 million of those are in the UK, it’s no surprise that there are many barriers to inclusion in many key aspects of society. As a disabled person myself you might have read or seen me talk all about inclusionContinueContinue reading “International Day of disabled persons – Inclusion Is Long Overdue”

Have your say – your say matters.

The deadline is fast approaching and I need your help. Why because having your say means more than you probably think it does – by responding to the consultation before the deadline on the 1st December gives every disabled person and their families a voice for change. Confused? If you weren’t aware already the governmentContinueContinue reading “Have your say – your say matters.”

‘How far have we come? How far have we to go?’

Be completely honest how much do you really know about disability history? Did you even know there was a month dedicated to celebrating? I’m sure most people would say no, even my own hubby said no when I asked, it wouldn’t surprise me if ‘no’ was your answer, it could very easily just pass youContinueContinue reading “‘How far have we come? How far have we to go?’”

25 years on – The Disability Discrimination Act how far have we come?

It’s 25 years since the Disability Discrimination Act became law, but the campaign for equality goes on! Passed on 8 November 1995 I was just 16 years old and very much clueless to a Community struggling in a world that discriminated against disabled people in regards to employment, education, transport, or goods and services. It’sContinueContinue reading “25 years on – The Disability Discrimination Act how far have we come?”

Ending the stigma

There’s no question that the stigma towards disabled people is very prevalent within society. Whether it’s someone seeing you as inspirational porn or giving you unwarranted pity – and honestly, when is pity ever warranted. We have all had that one moment when you can feel that burning stare from someone you don’t know orContinueContinue reading “Ending the stigma”

Referring to people with disabilities as inspirational

The word ‘Inspirational‘ it’s a funny old word but what does it mean, if you google the Word inspirational it comes up with ‘providing or showing creative or spiritual inspiration’. Fact – if you have a disability you would’ve been called ‘an inspiration’ at least once in your lifetime! I get called ‘an inspiration’ atContinueContinue reading “Referring to people with disabilities as inspirational”

Is it too hard to understand we just want independence!

Lately, I have felt the majority of my conversations with people have been around the word independence – why I fight so hard and why we deserve to have our Independence. Surely it can’t be that difficult to understand why? Maybe it’s just me and my stubbornness to make the world a more inclusive placeContinueContinue reading “Is it too hard to understand we just want independence!”