AccessAble – An Accessibility Guide

AccessAble App/Website – an accessibility guide that could change your life! Going out is as simple as picking a place, grabbing your keys, purse/Wallet maybe a jacketed if it’s chilly. Oh how I/many would love to say yes this is totally what happens. Being disabled you become a master planner. Research can be key toContinue reading “AccessAble – An Accessibility Guide”

Let’s not pretend disability simulation works and is okay!

Wheels in uproar. Last week my eyes where in disbelief at what I was reading and I wasn’t alone! Did you hear about the ‘A Day In My Wheels Challenge’ TV presenter Lorraine Keane and 25-strong group made up of celebrities, businesspeople and politicians took part in the 24 hour challenge – Keane wanted toContinue reading “Let’s not pretend disability simulation works and is okay!”

My journey, my new WAV!

Blue badge at the ready ‘In the words of William Wallace ‘FREEDOM’ Ever been so excited about something you can’t help but think you might burst – I was like a kid in a sweet shop the day my shiny new WAV (wheelchair accessible vehicle) was delivered. Normally I am a very patient person whenContinue reading “My journey, my new WAV!”

The Effects of Guilt on My Body and Mind

Would it surprise you if I was to say the most basic emotions related to Muscular Dystrophy (MD) and other chronic illnesses was Guilt. We all know that Guilt occurs when a person feels regret or shame in response to their actions (or inactions) in a particular situation. The feeling that they have gone againstContinue reading “The Effects of Guilt on My Body and Mind”

A real sh*ty reminder

Disclaimer: All views and opinions expressed on this blog are purely the blogger’s own. Several times over the past few weeks, i can safely say I’ve had a real toilet slap in the face reminder, why it’s so vital to have access to a crazy thing like a ‘toilet’. As a campaigner you feel likeContinue reading “A real sh*ty reminder”

Why It’s Important to Give Yourself resting time With Muscular Dystrophy

You may have noticed last that last week I didn’t post – I took a little nosedive off the side of my bed one morning two weeks ago, and even though I was battered and bruised, and took a little trip to A&E, felt terrible, and knew I needed to rest as much as possibleContinue reading “Why It’s Important to Give Yourself resting time With Muscular Dystrophy”

To Care is to share!

The best way to care about someone or something is to share knowledge with or about it. This is just one of the reasons I started writing. However, before I jump ahead I need to revisit the day I received my diagnosis’s. I was diagnosed with FHL1 Gene Mutation a rare form of Muscular DystrophyContinue reading “To Care is to share!”

Leaving a legacy

Leaving a legacy’ is this something you have thought about? Because for me It’s not something I can say has ever crossed my mind. Until now! I would even go a far as to say. I probably would’ve told you I don’t have any children and don’t choose to have any children, so I wouldn’tContinue reading “Leaving a legacy”