For Accessible Homes

Have you ever looked around at your home and thought I really hate living here not because of the decor or the area that you live, but because you’re stuck in one room unable to access any of the other rooms in your home. This one room acts as your living room, bedroom, kitchen andContinueContinue reading “For Accessible Homes”

Accepting a new normal

Accepting a new normal when I was just feeling like I had found my feet… well wheels! ‘Normal’ what does that even mean and does it really exist? Everyone’s normal is different or we would all be boring. plus life has this way of dealing us different cards of change from time to time whetherContinueContinue reading “Accepting a new normal”

Freedom is more than Just a state of mind, it’s my wheelchair

Independence. What does that one single word mean to you? Most people take their Independence for granted – that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyedContinueContinue reading “Freedom is more than Just a state of mind, it’s my wheelchair”

Campaigning 101

Over the last 3 years campaigning has become such a massive part of my world, which got me thinking about all of you, yes I think of you all on the odd occasion don’t get too excited now! Have you ever thought about starting your own campaign or just wanting to get involved in aContinueContinue reading “Campaigning 101”

Rolling up your sleeve – Free Flu jab

It’s that time of year again, even though it feels like yesterday I was last jabbed in the arm – most of us are use/waiting to receive a text message or a call from our GP surgery inviting us for the annual arm jab. This year will be very different when it comes to havingContinueContinue reading “Rolling up your sleeve – Free Flu jab”

Sharing in times of need.

Being disabled sometimes comes with a short or long list of needs It can feel like a military operation just leaving the house – well that’s if you’re anything like me and that doesn’t include my Mary Poppins handbag with the kitchen sink! Whether it’s equipment or supplies it’s not something we can just sayContinueContinue reading “Sharing in times of need.”

Challenging myself – while fundraising for Muscular Dystrophy

Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinueContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinueContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”