For a long time it's just been hubby and I plodding along together as a team, but having a Progressive muscle wasting disease called muscular dystrophy, my body changes year by year, it can sometimes be hard on a relationship/marriage with me constantly needing help with everyday tasks like dressing, washing even going to the … Continue reading When it all goes wrong with a personal care Assistant!
It's been over a year in the making but we finely made it, as of the 7th January I set a new milestone in my life living with Muscular Dystrophy. It's only ever been hubby and I battling though learning and adjusting as my condition gradually progressives as the years go by. I have a … Continue reading Setting new milestone with a personal assistant.
Let's face it not many people love being in hospital at the best of times it's not the most dignifying or pleasant experience sometimes, but being in hospital isn't easy when you have Muscular Dystrophy or any other disability for that matter the whole experience from start to finish can bring a whole host of … Continue reading Accessibility issues within NHS hospital’s for Disabled patience.