What my wheelchair has taught me about life.

Everyday is a life lesson some way or another. I have a rare form of Muscular Dystrophy a progressive muscle wasting condition I use a wheelchair 24/7, 365 days of the year unless we have a leap year of course. That has been my reality of more than two and a bit decades. But myContinueContinue reading “What my wheelchair has taught me about life.”

Incompetence nearly killed my mum!

Disclaimer: my life Kerry’s way is a personal blog. Any views or opinions represented in this blog are personal and belong solely to the blog owner, and do not represent those of people, institutions or organizations that the owner may or may not be associated with in professional or personal capacity unless explicitly stated. AnyContinueContinue reading “Incompetence nearly killed my mum!”

I want to scream I’m still here!

I don’t know about all of you – I sometimes have this overwhelming urge to shout ‘Hello, I’m still here’ I’m not invisible while frantically waving my arms in the air – well, if that was at all possible, I’ll need to rope in one of my PA’s to do that part! I’ve openly saidContinueContinue reading “I want to scream I’m still here!”

For Accessible Homes

Have you ever looked around at your home and thought I really hate living here not because of the decor or the area that you live, but because you’re stuck in one room unable to access any of the other rooms in your home. This one room acts as your living room, bedroom, kitchen andContinueContinue reading “For Accessible Homes”

Accepting a new normal

Accepting a new normal when I was just feeling like I had found my feet… well wheels! ‘Normal’ what does that even mean and does it really exist? Everyone’s normal is different or we would all be boring. plus life has this way of dealing us different cards of change from time to time whetherContinueContinue reading “Accepting a new normal”

Freedom is more than Just a state of mind, it’s my wheelchair

Independence. What does that one single word mean to you? Most people take their Independence for granted – that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyedContinueContinue reading “Freedom is more than Just a state of mind, it’s my wheelchair”

Campaigning 101

Over the last 3 years campaigning has become such a massive part of my world, which got me thinking about all of you, yes I think of you all on the odd occasion don’t get too excited now! Have you ever thought about starting your own campaign or just wanting to get involved in aContinueContinue reading “Campaigning 101”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinueContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”