Freedom is more than Just a state of mind, it’s my wheelchair

Independence. What does that one single word mean to you? Most people take their Independence for granted – that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyedContinue reading “Freedom is more than Just a state of mind, it’s my wheelchair”

Challenging myself – while fundraising for Muscular Dystrophy

Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”

Being disabled doesn’t automatically mean I should be depressed

I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat theContinue reading “Being disabled doesn’t automatically mean I should be depressed”

Having a disability isn’t a weakness

Having a disability isn’t a weakness, it should be seen as a strength. What does the word disability mean to you? When you look at someone with a disability what do you see strength or weakness. Is the first thing that pops into your mind ‘oh bless it must be hard’ or ‘I’m glad I’mContinue reading “Having a disability isn’t a weakness”

A letter to my 10 year old self.

I have always loved the thought of being able to travel back in time to maybe the roaring 20s or the flower power age of the ’70s, even 18th Century could be interesting but especially travelling along the course of my own life. I think it’s got a lot to do with recognizing how muchContinue reading “A letter to my 10 year old self.”

Ask about my disability if your curious.

Being a disabled adult I am acutely aware of the many challenges i will face in life, becoming somewhat immune to forms of discrimination and aggression. I almost expect not to be able to get into a shop because there’s a step or two to get into the shop or the Ilys too small forContinue reading “Ask about my disability if your curious.”