Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinue reading “What having Muscular Dystrophy feels like”
Category Archives: Muscular dystrophy
As an adult with Muscular dystrophy, i have a responsibility.
I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”
What my wheelchair has taught me about life.
Everyday is a life lesson some way or another. I have a rare form of Muscular Dystrophy a progressive muscle wasting condition I use a wheelchair 24/7, 365 days of the year unless we have a leap year of course. That has been my reality of more than two and a bit decades. But myContinue reading “What my wheelchair has taught me about life.”
Incompetence nearly killed my mum!
Disclaimer: my life Kerry’s way is a personal blog. Any views or opinions represented in this blog are personal and belong solely to the blog owner, and do not represent those of people, institutions or organizations that the owner may or may not be associated with in professional or personal capacity unless explicitly stated. AnyContinue reading “Incompetence nearly killed my mum!”
Freedom is more than Just a state of mind, it’s my wheelchair
Independence. What does that one single word mean to you? Most people take their Independence for granted – that’s ok because not everyone will stop and think about how in their every day life they are free to make decisions and act on them. Like being thirsty their ability to make themselves a drink, annoyedContinue reading “Freedom is more than Just a state of mind, it’s my wheelchair”
Challenging myself – while fundraising for Muscular Dystrophy
Three weeks ago I came across a post on social media by Muscular Dystrophy UK, they were launching their big 60 challenge. Now normally when I see any fundraising events it’s either something to do with running or jumping out of a plane – unfortunately having Muscular Dystrophy myself I need to know my limitsContinue reading “Challenging myself – while fundraising for Muscular Dystrophy”
My life with Myofibrillar Myopathy – Muscular Dystrophy
Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”
Being disabled doesn’t automatically mean I should be depressed
I’m one of those really annoying people that you meet/see that constantly smiles about absolutely nothing and always says hello to a complete stranger as I’m wheeling past. I think I’m a happy go lucky person that tries to see the positive and not the negative in every situation, I try not to sweat theContinue reading “Being disabled doesn’t automatically mean I should be depressed”