Test driving the Robotic arms

I’d never heard of the neater arm supports or the neater eater before, so was super excited but a little nervous at the same time as arm strength isn’t as good as it was a few years back, but me being me I’m always up for trying anything once (within reason of course not aboutContinue reading “Test driving the Robotic arms”

I’ve never been this ill before even with having Muscular Dystrophy

It’s now been over a month since I came out of Milton Keynes university hospital after spending 3 weeks In their care, it’s been a struggle adapting back into home life, finding the energy to be stood up and being put into my chair has been hard work let alone getting washed and dressed IContinue reading “I’ve never been this ill before even with having Muscular Dystrophy”

As my body changes, so do my needs.

As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other’s are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change’s when your living withContinue reading “As my body changes, so do my needs.”

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinue reading “Walking to wheelchair – my story of transitioning.”

Being proud of who you are.

I’ve not been disabled my entire life, Some people’s responses are often different some positive some sound condescending. I’m not one to generally bring up in conversation about being disabled with new groups of people, not because it bothers me more because it can create an awkward atmosphere for others. people can give you the “awwContinue reading “Being proud of who you are.”