Why we still need awareness.

Hey everyone, welcome back. Let’s talk about awareness. You may, or may not know we have a few coming up over the next few months like the month of June is ‘Carers Week’ and July is ‘Disability Pride’. You might have very mixed feelings when it comes to all the awareness around disability but everyContinueContinue reading “Why we still need awareness.”

I have been nominated for the National Diversity awards

I am incredibly honoured and blown away that someone took the time to nominate me for a National Diversity Award. Category: positive role model – Disability. The National Diversity Awards – is a swish black tie event, which celebrates the exceptional achievements of grass-root communities that tackle the issues in today’s society, giving them recognitionContinueContinue reading “I have been nominated for the National Diversity awards”

Life isn’t fair, but I can make the best of it

If we lived in a fair world, Muscular Dystrophy would not exist. But that also goes for all diseases, yes? Unfortunately, life isn’t fair. Life has a way of dealing you cards you wouldn’t of picked for yourself, I was diagnosed with the muscle-wasting disease 18 years ago. Even with an uncertain future, there’s noContinueContinue reading “Life isn’t fair, but I can make the best of it”

Our accessible home anniversary

Wow I can’t actually believe we are in May where has the time gone!? The first weekend in may ‘bank holiday weekend’ is a special memory for hubby and i, but more for me it was the weekend we finally moved into our accessible home provided by Habinteg – I have spoken a few timesContinueContinue reading “Our accessible home anniversary”

Why I am in the activist

Let’s face it this last year has been a number of emotions for all of us. In the midst of it all, I have been thinking a lot about activism. I’ve been thinking about why and how I became an activist in the first place, plus about how activism is even more essential now thanContinueContinue reading “Why I am in the activist”

I am ready to move forward after my second jab

I am officially vaccinated up! Twelve weeks ago i had my first dose, i can finally say that on April 21st, I received my second dose of the AstraZeneca COVID-19 vaccine. According to AstraZeneca who confirms 100% protection against severe disease, hospitalisation and death in the primary analysis of phase III trials. Like most vaccinationsContinueContinue reading “I am ready to move forward after my second jab”

Removing barriers of employment for disabled people

If the future me had wheeled into my pub at 24, sat me down and said your life is going to change in more ways than one. It might take you a few years to find your place within society and where you truly belong in this crazy world but you will. When i wasContinueContinue reading “Removing barriers of employment for disabled people”

An open letter to muscular dystrophy parents

It’s easy for me to sit here writing about my experiences when it comes to living with muscular dystrophy but what about the parents that live though every fall, slip, hospital appointment. Muscular dystrophy can affect all ages at any point in life. Whether your child has been living with muscular dystrophy for years orContinueContinue reading “An open letter to muscular dystrophy parents”