My disability, how does it define me, being me!

I’ve always said I’m not defined by my Wheelchair – now I’ve not changed my mind I still feel the same way. But, I was reading something the other day on Identities and it got me thinking about just how I identify myself and what my identity means to me. My identity is important toContinue reading “My disability, how does it define me, being me!”

10 reason I’m pretty awesome because of my disability – not despite it!

When your Disabled there’s certain things you see and hear people say like ‘Oh <insert persons name here> is so lovely despite their disability’.  As someone who identifies themselves as being disabled, that one word, ‘despite’ kinda makes me a little crazy. Why can’t we just be lovely? What does anyone’s disability have to doContinue reading “10 reason I’m pretty awesome because of my disability – not despite it!”

How Muscular Dystrophy shaped me as the person I am

Having a disability that progressively gets worse over time isn’t all sunshine and roses, but it’s not as depressing as you may think, Disability changes a person from the way you think to how you see the world. If you’ve not read anything I’ve written before now and unsure of what Muscular Dystrophy is it’sContinue reading “How Muscular Dystrophy shaped me as the person I am”

Test driving the Robotic arms

I’d never heard of the neater arm supports or the neater eater before, so was super excited but a little nervous at the same time as arm strength isn’t as good as it was a few years back, but me being me I’m always up for trying anything once (within reason of course not aboutContinue reading “Test driving the Robotic arms”

I’ve never been this ill before even with having Muscular Dystrophy

It’s now been over a month since I came out of Milton Keynes university hospital after spending 3 weeks In their care, it’s been a struggle adapting back into home life, finding the energy to be stood up and being put into my chair has been hard work let alone getting washed and dressed IContinue reading “I’ve never been this ill before even with having Muscular Dystrophy”

As my body changes, so do my needs.

As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other’s are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change’s when your living withContinue reading “As my body changes, so do my needs.”

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinue reading “Walking to wheelchair – my story of transitioning.”

Being proud of who you are.

I’ve not been disabled my entire life, Some people’s responses are often different some positive some sound condescending. I’m not one to generally bring up in conversation about being disabled with new groups of people, not because it bothers me more because it can create an awkward atmosphere for others. people can give you the “awwContinue reading “Being proud of who you are.”