Are the ‘don’ts’ helping?

We always hear about the ‘don’ts’ when it comes to talking about living with a disability/impairment and full disclosure I have written something in the past. You’ll see them pop up often enough: “10 things not to say to someone with a disability/impairment”, or “10 things you shouldn’t say to someone in a wheelchair” TheyContinueContinue reading “Are the ‘don’ts’ helping?”

Part 2 – Struggling to access a smear test? What you can do.

Last week I spoke openly about the barriers to cervical screening for all genders with a disability/impairment – for something that is classed as a routine procedure and offered to all genders with a cervix from the age of 25 there is still huge barriers to over come before we get it right for everyoneContinueContinue reading “Part 2 – Struggling to access a smear test? What you can do.”

Lessons we shouldn’t forget

Like most in the disabled community I have not stopped shielding throughout this pandemic – but amongst the unforgettable tragedies there have been some valuable lessons that hopefully won’t be lost or forgotten. It’s important to remember that the 13.9 million disabled people living in the UK have been adapting their lives for many yearsContinueContinue reading “Lessons we shouldn’t forget”

Part 1 – Why can’t we access a smear test?

Let’s talk…. This is a subject we need to talk more openly about, and that does mean ALL genders. it’s not a subject we should or can shy away from – yes it’s one of those taboo subjects that people in all walks of life struggle to talk about. The lack of access to smearContinueContinue reading “Part 1 – Why can’t we access a smear test?”

Why are people afraid?

Disability/impairment – what is it that scares people? It is a question I would love to get my wheels stuck into with a room full of people and ask why? Who, just because we are disabled are being seen as different – less than, less able. If anything that’s being proven more though our voicesContinueContinue reading “Why are people afraid?”

I’m back! – My activism goals for 2021

Hey there, happy new year – missed me? It has definitely been strange not writing but I stopped the urge to come back early, it was hard I can tell you. But I am all rested and ready to get my wheels stuck back into things, I love nothing more than a fresh diary toContinueContinue reading “I’m back! – My activism goals for 2021”

My life with Myofibrillar Myopathy – Muscular Dystrophy

Lately, I’ve spoken a lot about having a rare form of Muscular Dystrophy a progressive muscle-wasting condition – If you’ve been following my journey you’ll already know and if not welcome. I’ve never really explained in detail the type of rare Muscular Dystrophy I have and how it affects me so It’s probably time IContinueContinue reading “My life with Myofibrillar Myopathy – Muscular Dystrophy”

The barriers we face as disabled people

Have you ever had a moment where your face tells a thousand stories, that real eye-rolling moment in a conversation when someone says ‘oh I know just how you feel I once had an injury and couldn’t do anything for weeks’, I don’t know about you but I can pretty much tell when someone isContinueContinue reading “The barriers we face as disabled people”