Having a disability that progressively gets worse over time isn’t all sunshine and roses, but it's not as depressing as you may think, Disability changes a person from the way you think to how you see the world. If you've not read anything I've written before now and unsure of what Muscular Dystrophy is it's … Continue reading How Muscular Dystrophy shaped me as the person I am now.
Have you ever thought what the word Independence means to you!? · Freedom · Choice Or something completely different!? For me the word Independence is just a word, a word I feel I'm constantly chasing and battling with, It's a word that in some ways doesn't apply to me all the time. As … Continue reading A quest for more independence!
On Wednesday 24th June was a massive stepping stone was made for the changing places toilets campaign a new bill has PASSED the 1st round in the house of Commons. How did this happen.A Ten Minute Rule Bill on changing places toilets was introduced by Paula Sherriff MP who did an amazing speech about the … Continue reading Changing Places Toilets Campaign – And House of commons
There’s something exciting about packing a little suitcase for a night away somewhere new, so when the opportunity to spend the night at Chicheley Hall thanks to a family wedding my little suitcase was packed in my head ready to go. I've always said that great Britain has to offer most beautiful places and countryside … Continue reading A wheelchair night at Chicheley Hall
As this year marks a 100 years since women won the right to vote as I was reading about the suffragette I found a story about Rosa May Billinghurst the disabled suffragette and women's rights activist she was known as the 'cripple suffragette' I found myself wanting to know more about Rosa may Billinghurst and … Continue reading New found heroine – The Disabled Suffragette.
As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other's are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change's when your living with … Continue reading As my body changes, so do my needs.
As lovely as it's been to sit back and relax over the Christmas period, there needs to be a time where you have to get back to reality put the tree away for another year, start planning the next 12 months. And of course let's no forget It's that time of year where all you … Continue reading Christmas is over – new year has started
So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I've understood from a pretty young age that … Continue reading Walking to wheelchair – my story of transitioning.