I am incredibly honoured and blown away that someone took the time to nominate me for a National Diversity Award. Category: positive role model – Disability. The National Diversity Awards – is a swish black tie event, which celebrates the exceptional achievements of grass-root communities that tackle the issues in today’s society, giving them recognitionContinueContinue reading “I have been nominated for the National Diversity awards”
Tag Archives: MDUK
Our accessible home anniversary
Wow I can’t actually believe we are in May where has the time gone!? The first weekend in may ‘bank holiday weekend’ is a special memory for hubby and i, but more for me it was the weekend we finally moved into our accessible home provided by Habinteg – I have spoken a few timesContinueContinue reading “Our accessible home anniversary”
An open letter to muscular dystrophy parents
It’s easy for me to sit here writing about my experiences when it comes to living with muscular dystrophy but what about the parents that live though every fall, slip, hospital appointment. Muscular dystrophy can affect all ages at any point in life. Whether your child has been living with muscular dystrophy for years orContinueContinue reading “An open letter to muscular dystrophy parents”
Muscular Dystrophy and fatigue
Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinueContinue reading “Muscular Dystrophy and fatigue”
What having Muscular Dystrophy feels like
Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinueContinue reading “What having Muscular Dystrophy feels like”
Technology and disabled People
Technology is pretty much at our fingertips no matter where we turn these day, from Smart speakers, new smartphones coming out each year, cars with built-in wifi, and music and television can be accessed from almost anywhere. To some the idea of being unplugged and off grid can seem like something that exists only inContinueContinue reading “Technology and disabled People”
As an adult with Muscular dystrophy, i have a responsibility.
I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinueContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”
Dear Muscular Dystrophy: Thank you for making me, me.
It’s my birthday, it’s okay I’m not expecting a surprise birthday party or for you all to sing me happy birthday showering me with gifts! As most of us are still grounded I’m thinking celebrating all month is completely acceptable. Yes?! As each year passes me by I like to make small changes or adjustmentsContinueContinue reading “Dear Muscular Dystrophy: Thank you for making me, me.”
Kerry Thompson - My Life, Kerry's Way. 