Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinueContinue reading “Muscular Dystrophy and fatigue”
Tag Archives: disability
My body is ready for better weather!
Clocks have changed, nights are getting long does this hopefully mean better weather is on it’s way too. My wheels are crossed and my body is ready! Don’t get to excited i’m about to pull out my bikini and flash flesh, have you tried wearing a bikini in a wheelchair i have definitely not masteredContinueContinue reading “My body is ready for better weather!”
What having Muscular Dystrophy feels like
Muscular Dystrophy still a very misunderstood condition, if you are familiar with the muscular dystrophy then it’s probably easy to tell if someone has it. But unfamiliar you could easily mistake it for something else like MS say. I can’t tell you the amount of times this has happened to me! However, muscular dystrophy affectsContinueContinue reading “What having Muscular Dystrophy feels like”
Technology and disabled People
Technology is pretty much at our fingertips no matter where we turn these day, from Smart speakers, new smartphones coming out each year, cars with built-in wifi, and music and television can be accessed from almost anywhere. To some the idea of being unplugged and off grid can seem like something that exists only inContinueContinue reading “Technology and disabled People”
Creating a good support system
As i am sure most disabled people will tell you creating a good support system is crucial, especially when life can sometimes feel like one big roller coaster ride we call life, whether you have an illness or not – without the right support system around you it can make a huge impact if it’sContinueContinue reading “Creating a good support system”
As an adult with Muscular dystrophy, i have a responsibility.
I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinueContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”
Dear Muscular Dystrophy: Thank you for making me, me.
It’s my birthday, it’s okay I’m not expecting a surprise birthday party or for you all to sing me happy birthday showering me with gifts! As most of us are still grounded I’m thinking celebrating all month is completely acceptable. Yes?! As each year passes me by I like to make small changes or adjustmentsContinueContinue reading “Dear Muscular Dystrophy: Thank you for making me, me.”
Choose to change!
It’s almost our day ladies! International Women’s Day is approaching that fast it’s tomorrow. While i think you should celebrate yourself every day, International Women’s Day is a great opportunity to reflect on being a woman while celebrating our achievements especially in a world that doesn’t really see us, disabled or not. This day isContinueContinue reading “Choose to change!”
Kerry Thompson - My Life, Kerry's Way. 