I am officially vaccinated up! Twelve weeks ago i had my first dose, i can finally say that on April 21st, I received my second dose of the AstraZeneca COVID-19 vaccine. According to AstraZeneca who confirms 100% protection against severe disease, hospitalisation and death in the primary analysis of phase III trials. Like most vaccinationsContinueContinue reading “I am ready to move forward after my second jab”
Tag Archives: musculardystrophy
Removing barriers of employment for disabled people
If the future me had wheeled into my pub at 24, sat me down and said your life is going to change in more ways than one. It might take you a few years to find your place within society and where you truly belong in this crazy world but you will. When i wasContinueContinue reading “Removing barriers of employment for disabled people”
An open letter to muscular dystrophy parents
It’s easy for me to sit here writing about my experiences when it comes to living with muscular dystrophy but what about the parents that live though every fall, slip, hospital appointment. Muscular dystrophy can affect all ages at any point in life. Whether your child has been living with muscular dystrophy for years orContinueContinue reading “An open letter to muscular dystrophy parents”
Overcoming being self- conscious about using a power chair
If you already follow my journey though this crazy imperfect life, you will already know the exciting new i announced a week ago about receiving my new wheels, and if your new to my page welcome it nice to have you here. I think it’s easier for society to automatically think that if you’re aContinueContinue reading “Overcoming being self- conscious about using a power chair”
Our Powers of Observation
Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,ContinueContinue reading “Our Powers of Observation”
Redefining the word ‘independence‘
I have written about the importance of Independence in the past and you will hear me in almost all of my interviews talking about it as well. But I read something the other day that made me think, so let me talk about independence in a different way! As children we all strived to becomeContinueContinue reading “Redefining the word ‘independence‘”
I have my legs back!
Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinueContinue reading “I have my legs back!”
Muscular Dystrophy and fatigue
Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinueContinue reading “Muscular Dystrophy and fatigue”
