Facing the physical transitions

Transitions are a part of life from the moment we’re born. We go through puberty as teenagers and our bodies change. We move out of our parents’ place to go to university or start a new job. We get older, some of us have kids, and our perspectives change. When living with Muscular Dystrophy weContinueContinue reading “Facing the physical transitions”

How to avoid falls

Some of you may have experienced a drunken fall on a night out, managed to get up, brush yourself down and move on with barely any scrapes or bruises. I may not have fallen in years, but I can still very clearly remember every fall I had. Where it was and how much time itContinueContinue reading “How to avoid falls”

Access means??

Disclaimer: This is a sponsored article, all views and opinions expressed on this blog are purely the blogger’s own. There are over 14 million disabled people living in the UK, it’s safe to say have been adapting their lives for many years, already faced with restrictions, health anxieties and challenges. It’s just a part ofContinueContinue reading “Access means??”

Reflections in Colour – Muscular Dystrophy UK

Muscular Dystrophy has always been very close to my heart, with my mum being diagnosed when I was a child and then myself when I was 24 with the same rare form of Muscular Dystrophy a progressive muscle wasting condition. So i’m sure you can imagine I was very honoured and excited when my friendContinueContinue reading “Reflections in Colour – Muscular Dystrophy UK”

Life isn’t fair, but I can make the best of it

If we lived in a fair world, Muscular Dystrophy would not exist. But that also goes for all diseases, yes? Unfortunately, life isn’t fair. Life has a way of dealing you cards you wouldn’t of picked for yourself, I was diagnosed with the muscle-wasting disease 18 years ago. Even with an uncertain future, there’s noContinueContinue reading “Life isn’t fair, but I can make the best of it”

Why I am in the activist

Let’s face it this last year has been a number of emotions for all of us. In the midst of it all, I have been thinking a lot about activism. I’ve been thinking about why and how I became an activist in the first place, plus about how activism is even more essential now thanContinueContinue reading “Why I am in the activist”

Overcoming being self- conscious about using a power chair

If you already follow my journey though this crazy imperfect life, you will already know the exciting new i announced a week ago about receiving my new wheels, and if your new to my page welcome it nice to have you here. I think it’s easier for society to automatically think that if you’re aContinueContinue reading “Overcoming being self- conscious about using a power chair”

Our Powers of Observation

Muscular dystrophy takes my physical abilities, but not my powers of observation if anything it just heightens my ability to observe more than others! I may joke about calling me a superhero because of the name of my muscular dystrophy ‘FHL1 Gene mutation’. – my physical limitations just heighten other abilities like my observational skills,ContinueContinue reading “Our Powers of Observation”