I have written about the importance of Independence in the past and you will hear me in almost all of my interviews talking about it as well. But I read something the other day that made me think, so let me talk about independence in a different way! As children we all strived to becomeContinueContinue reading “Redefining the word ‘independence‘”
Tag Archives: Wheelchair
I have my legs back!
Ten months ago i wrote an article called ‘you stole my legs’. After being so sick and tired of being lied to and treated like i was ‘less than’ by a company that has contact with the disabled community every single day. There is a huge misconception that most people believe that when you haveContinueContinue reading “I have my legs back!”
Muscular Dystrophy and fatigue
Fatigue is the bane of my life! Having a rare form of muscular dystrophy that’s a progressive muscle wasting condition fatigue can be a huge part of my life but what is fatigue and how does it affect people with Muscular Dystrophy. It’s a feeling of extreme tiredness, exhaustion and a lack of energy. ButContinueContinue reading “Muscular Dystrophy and fatigue”
My body is ready for better weather!
Clocks have changed, nights are getting long does this hopefully mean better weather is on it’s way too. My wheels are crossed and my body is ready! Don’t get to excited i’m about to pull out my bikini and flash flesh, have you tried wearing a bikini in a wheelchair i have definitely not masteredContinueContinue reading “My body is ready for better weather!”
As an adult with Muscular dystrophy, i have a responsibility.
I have always said our superpower is having the ability to share our experiences. The older i get i feel a sense of responsibility to the next generation growing up. Or not yet living with Muscular dystrophy. As an adults with myofibrillar myopathy a rare form of muscular dystrophy I do believe we should helpContinueContinue reading “As an adult with Muscular dystrophy, i have a responsibility.”
The value of having friends with Muscular Dystrophy
We all know the value and impact having great friends can have on your life – the ones that truly make a difference in your life weather it is putting the world to rights over a girly chat or watching football with the boys they are the ones you go to for advice but whatContinueContinue reading “The value of having friends with Muscular Dystrophy”
Representation matters
Representation. As a disabled person I know what that one word means to me, but what does it mean to you? As human beings what we visually see can make a huge impact on our lives and if you’re visually impaired you rely on someone to describe what they are seeing, so what impact doesContinueContinue reading “Representation matters”
Life lessons I’ve learnt being disabled
Spoiler alert: Being disabled means living in a society that wasn’t designed with mine or other disabled people’s needs in mind. That first sentence may sound rather harsh but in reality very true, there is no other way to describe it from a disabled person’s point of view – It can create difficult situations, andContinueContinue reading “Life lessons I’ve learnt being disabled”
