A quest for more independence!

Have you ever thought what the word Independence means to you!?   · Freedom  · Choice Or something completely different!?   For me the word Independence is just a word, a word I feel I’m constantly chasing and battling with, It’s a word that in some ways doesn’t apply to me all the time. AsContinue reading “A quest for more independence!”

I miss

I miss long walks though the country side. Running my hands though the long grass as I’m walking though a field.  I miss dipping my feet in the sea and jumping coz its cold, feeling the sand in-between my toes. I miss sitting on the floor crossing my legs together, being able to sit onContinue reading “I miss”

Thank you

Thank you for the sacrifices you make, thank you for the things you do even when I know you don’t want to, thank you for being my rock when times are hard, thank you for being my best friend, thank you for sometimes being the voice of reason, thank you for the laughter you giveContinue reading “Thank you”

A wheelchair night at Chicheley Hall

There’s something exciting about packing a little suitcase for a night away somewhere new, so when the opportunity to spend the night at Chicheley Hall thanks to a family wedding my little suitcase was packed in my head ready to go. I’ve always said that great Britain has to offer most beautiful places and countrysideContinue reading “A wheelchair night at Chicheley Hall”

As my body changes, so do my needs.

As easy or hard it is sometimes for me to admit or come to turns with, my body is changing in more ways than one, some changes I can control other’s are just part of having and living with Muscular Dystrophy, it can sometimes feel very lonely going though those change’s when your living withContinue reading “As my body changes, so do my needs.”

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinue reading “Walking to wheelchair – my story of transitioning.”