I miss

I miss long walks though the country side. Running my hands though the long grass as I'm walking though a field.  I miss dipping my feet in the sea and jumping coz its cold, feeling the sand in-between my toes. I miss sitting on the floor crossing my legs together, being able to sit on … Continue reading I miss

Walking to wheelchair – my story of transitioning.

So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I've understood from a pretty young age that … Continue reading Walking to wheelchair – my story of transitioning.