So I thought I’d talk about how I transitioned from walking full-time to being completely wheelchair bound. This is my personal story of how my mobility has been affected by the progression of FHL1 Gene mutation Muscular Dystrophy. Having grown up with my mum having the same disease, I’ve understood from a pretty young age thatContinueContinue reading “Walking to wheelchair – my story of transitioning.”
Tag Archives: Blog
Laying it bare.
what do you see when you look at me!? someone who alway’s has a smile and looks like they have everything under control or someone who doesn’t!? It’s mental health awareness day So here’s me laying it bare for all to read, I’ve not always been very open about my depression or anxiety, to lookContinueContinue reading “Laying it bare.”
How Aloe Vera help’s me.
It’s crazy to think that this funny looking green plant has so many healing ways, We’ve all heard of the aloe vera plant it really wouldn’t surprise me if you have a plant called vera tucked away on a window sill somewhere, I was first introduced to this healing wonder by my mummy, “I’ve gotContinueContinue reading “How Aloe Vera help’s me.”
Being proud of who you are.
I’ve not been disabled my entire life, Some people’s responses are often different some positive some sound condescending. I’m not one to generally bring up in conversation about being disabled with new groups of people, not because it bothers me more because it can create an awkward atmosphere for others. people can give you the “awwContinueContinue reading “Being proud of who you are.”
Most people take for granted but for some of us it’s the thing of nightmares!!
Theses days just wheeling out the door its a check list of have we got everything, before hubby Fort Knox the door behind us! kinda reminds me of a new mum packing half the house while muttering away at the baby we’ll take this just in case…that’s pretty much my life!! When your planning aContinueContinue reading “Most people take for granted but for some of us it’s the thing of nightmares!!”
Not Accessible for everyone!!
Over the years I’ve had several conversations with different people for all different reasons down to care, equipment, benefits and general help. But all conversation seem to have the same ending a very misconstrued idea of what’s available and accessible to people who have any form of disability. Just recently I’ve had a few issuesContinueContinue reading “Not Accessible for everyone!!”
Feelings
Feeling have a funny way of raring there little head back into your heart after thinking you had made them disappeared whether it’s locking that volt up and throwing away the key “forever” So quicker than I could scramble around to find the key to lock it back up!! that locked volt popped wide open toContinueContinue reading “Feelings “
Working from my go-kart
I guess the clue’s in the title on where im going with this one!! Before i get to the present I’m going to go back a few years or more I’ll probably waffle on, try not to but this is me so you’ve not much hope!! Haha sorry…. From a young age I’ve watched myContinueContinue reading “Working from my go-kart “
