I want to scream I’m still here!

I don’t know about all of you – I sometimes have this overwhelming urge to shout ‘Hello, I’m still here’ I’m not invisible while frantically waving my arms in the air – well, if that was at all possible, I’ll need to rope in one of my PA’s to do that part! I’ve openly saidContinueContinue reading “I want to scream I’m still here!”

Using a disabled toilet when you don’t need to

Anyone that knows me, knows that my favourite subject is talking toilets yes it’s a strange subject to get my wheels excited about I know. But not just any old toilets you’ll find me normally talking about changing places but this time around I want to talk about all accessible toilets. And a subject thatContinueContinue reading “Using a disabled toilet when you don’t need to”

Accessible Housing needs

13.9 million Disabled people in the UK. 1.8 million have an accessible housing need – 580 thousand are of working age. We’ve heard government saying like ‘Build better, build beautiful’ or the newest one ‘Build, build, build’. Remember the famous movie of a young farm girl, clicking the heels of her sparkling, ruby red slippersContinueContinue reading “Accessible Housing needs”

Having a disability comes with a big price tag.

Ever looked at an item thinking I can totally find that cheaper elsewhere or online – every penny helps right?. But what if you already know it won’t be cheaper elsewhere but it’s something you need to help keep your Independence. Society seems to have this deluded conception that when you have a disability everythingContinueContinue reading “Having a disability comes with a big price tag.”

You Stole My Legs

Lied to, lied about, disrespected in my own home, bullied, complaints brushed under the carpet, advised to email only not to call anymore. All made by one company that says and I quote “We provide High-Quality, outcome-led, services in wheelchair & Community equipment” . There is a huge misconception that most people believe that whenContinueContinue reading “You Stole My Legs”

Feeling anxious about returning back to normal!!

When will it end!? The question on everyone’s mind. Although we have no idea when lockdown will finish for some of you it will end sooner than for some of us in the disability and shielded Community that may not happen until a vaccine has been found which could take until next year. However. I’mContinueContinue reading “Feeling anxious about returning back to normal!!”

I have a wheelchair Barbie

I maybe one of the rare breeds of girls growing up that wasn’t really interested in barbie dolls when I was younger, I was more an outdoorsy girl. I remember my grandparents having my aunties and mums old dolls in a little navy blue case but I never really had much interest they came outContinueContinue reading “I have a wheelchair Barbie”

Our marriage and Muscular Dystrophy

Is my marriage defined by my disability!? Even up to the day of saying I Do I asked hubby to be if he was totally sure that he wanted to marry me, not for your normal wedding jitter reasons like do you really love me, will you be fateful, this is forever questions. None ofContinueContinue reading “Our marriage and Muscular Dystrophy”