My Disability, My Identity

Your identity is everything it’s the person you are, the person you identify with and when you lose your identity who are!? As humans in a complex world of boundaries and decisions, it’s really not all that surprising that by trying to make sense of it all we put everyone and everything into groups, categoriesContinueContinue reading “My Disability, My Identity”

Blue Monday!

Blue Monday is the name given to a day in January claim to be the most depressing day of the year! Well isn’t that just wonderful it’s not like some of us don’t struggle already every day, but how true Is it really is is!? Typically it’s the third Monday of the month meaning thatContinueContinue reading “Blue Monday!”

Being Disabled does not make me a burden to my partner

Being disabled does NOT make me a burden to my partner. Being disabled does NOT make me a burden to anyone! Lets call it the B-Word I’ve never approach this subject before so why now; I think it’s probably a word I know I’ve felt many time before as I’m sure many other disabled peopleContinueContinue reading “Being Disabled does not make me a burden to my partner”

My personal Independence payment and decision

Back in August the brown envelope of doom came throw my letter box (thanks Mr Postie!), I wasn’t expecting it so at first my anxiety was fine then I opened it read the first few lines and boom the panic set in. Not going to lie how much fear the thought of the assessment processContinueContinue reading “My personal Independence payment and decision”

I’m not a wheelchair!

Living with a disability can mean a whole mixture of things; but yes, you actually do have a disability or a list as long as your arm, you find ways of adapting your life and how you do things. One big down side of having a disability you also have to handle how others commentContinueContinue reading “I’m not a wheelchair!”

5 Things I Do Differently Living With Muscular Dystrophy

Having a Disabilty I’ve found people are always have a natural Curiosity to how I do things, over the years of having a muscular dystrophy a Progressive condition I’ve adapted many times over the years how I do certain things! A while back my fab friend Fi from Life of an Ambitious Turtle wrote a great postContinueContinue reading “5 Things I Do Differently Living With Muscular Dystrophy”

Benefits of being in a wheelchair

It’s often looked at when your bum sits in a wheelchair it’s a negative thing by some non-disabled people, of course there are barriers and challenges everyday be silly not to say that, but focusing on the positives rather than the negatives. When life gives you lemons, make a gin and tonic and use theContinueContinue reading “Benefits of being in a wheelchair”

MDUK President’s Award ~ Campaigner of the year 2019.

It’s been a few years since I went to a muscular Dystrophy uk conference but this one will always hold special place in my heart for many reasons. I totally feel like I’ve stolen somebody else’s life and someone’s going to pop up from behind the bushes saying I’d like my life back now please!ContinueContinue reading “MDUK President’s Award ~ Campaigner of the year 2019.”